Diaries of a Heart Warrior
I'm Amy Erhart, the host of Diaries of a Heart Warrior; born with a Congenital Heart Defect (Hypoplastic Left Heart Syndrome-HLHS). I'm creating this podcast to bring you stories told by individuals living with a Congenital Heart Defect. Episodes will also include the parent(s) point of view on how it felt to receive the diagnosis of their child; what they wish they knew and what life looks like now. Let's take a journey and explore the lives of Heart Warriors as the stories are told from their perspective.
Diaries of a Heart Warrior
Andrew's Story- HLHS
Today, Andrew tells his story of being born with HLHS. His parents did not know about his heart defect prior to being born and his diagnosis came days after being home. Given his experience in middle school Andrew had to find a balance between being defined by his heart defect and being proud of it. I think Andrew does a fantastic job telling his story and how he has found the balance over come the shame he used to feel and how the CHD community has helped him.
If you would like to be on the show please reach out!
Facebook: Amy Erhart Cunningham
Instagram: amyerhart_hlhs