Diaries of a Heart Warrior
I'm Amy Erhart, the host of Diaries of a Heart Warrior; born with a Congenital Heart Defect (Hypoplastic Left Heart Syndrome-HLHS). I'm creating this podcast to bring you stories told by individuals living with a Congenital Heart Defect. Episodes will also include the parent(s) point of view on how it felt to receive the diagnosis of their child; what they wish they knew and what life looks like now. Let's take a journey and explore the lives of Heart Warriors as the stories are told from their perspective.
Diaries of a Heart Warrior
From Awareness to Action: Join the HeartWorks Movement
Heartworks is a nonprofit organization founded in June202 to build on the groundbreaking work started by Tod and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) at Mayo Clinic in 2010.
Today, Kelly and I had a great conversation about a clinical trial through Heartworks that involves a skin punch biopsy to create cardiac stem cells using reprogrammed cell technology. We shared our personal experiences and discussed how we feel about the innovative work Heartworks is doing for the CHD community.
Check out all the links!
https://heartworksinc.org/clinical-trials
Find Kelly @ https://www.facebook.com/kelly.meyers.18
If you would like to be on the show please reach out!
Facebook: Amy Erhart Cunningham
Facebook Page: Diaries of a Heart Warrior
Instagram: amyerhart_hlhs