Grace Through Pain: A Journey To Hope
MS Warrior, Brain Surgery Survivor, Trigeminal Neuralgia Warrior, Filmmaker, CEO. Join me as take on this wild journey called life.
Living with Chronic Illness: It's not just about the tough days, but also about the triumphs, big and small. I'll share my stories, the highs, the lows, and everything in between. From personal struggles to unexpected joys, it's all here, raw and unfiltered.
Searching for Grace: How do we find grace in the chaos? Together, we'll explore strategies to cope, ways to embrace our realities, and how to thrive despite the challenges. This podcast is more than just about coping; it's about flourishing.
Whether you're someone living with a chronic illness, know someone who is, or are just curious about this journey, this podcast is for you. Let's laugh, cry, and learn together.
Episodes
21 episodes
Dating in Your 40s with Baggage… and a Pharmacy
In this episode, I’m diving into the wild world of dating in your 40s—while living with a chronic illness. I’ll be sharing some personal stories from my latest birthday, those awkward 'getting to know you' moments, and how self-care has become ...
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Season 1
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Episode 21
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24:09
My MS Diagnosis
In this episode, I open up about my journey with multiple sclerosis, starting from my diagnosis story to where I am today. I share the early symptoms I experienced, the shock of the diagnosis, and how I’ve gradually moved towards acceptance and...
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Season 1
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Episode 20
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25:39
Embracing Grace: The Darkness and Light, Navigating Emotions with MS
In this episode, I open up about my feelings of resentment, anger, and bitterness towards others who complain about their problems. I discuss the shame and secrecy that often surround these emotions and the ongoing nature of living with MS. Whi...
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Season 1
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Episode 19
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18:29
Hope on the Horizon: Exploring CAR T Cell Therapy with Kyverna Pharmaceuticals
In this episode, I’m thrilled to share my recent trip to San Francisco, where I was invited by Kyverna Pharmaceuticals to learn about their pioneering CAR T cell therapy, currently in clinical trials. This therapy holds incredible promise for t...
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Season 1
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Episode 18
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25:47
Navigating Long COVID and POTS: A Conversation with Katie Cavan
In this episode, Katie Cavan shares her journey with long COVID and POTS, discussing the challenges of securing a diagnosis and managing a range of debilitating symptoms. She emphasizes the importance of self-advocacy in the face of skepticism ...
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Season 1
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Episode 17
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52:59
When Bob Iger Replied: Unpacking the New Disney DAS Rules
In this episode, I delve into the recent changes to Disney's Disability Access Service (DAS), sharing my personal experiences and frustrations. Despite facing a lack of empathy from a cast member during a Zoom interview and an unhelpful respons...
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Season 1
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Episode 16
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40:26
Optic Neuritis: Coping with the Irreversible Damage of MS
In this episode, I open up about my recent health struggles and the profound emotional toll they've taken on me. Living with an incurable disease has been incredibly challenging, especially coming to terms with situations that can't be fixed or...
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Season 1
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Episode 15
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21:46
Searching for Grace within My Fertility Journey
In this episode, I open up about my personal fertility journey, sharing the challenges and emotional decisions I've faced. From freezing my eggs to navigating IVF, and the complexities of finding a sperm donor, I discuss it all. I'll also touch...
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Season 1
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Episode 14
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23:41
Unlocking First Class: Points, Miles, and Travel Tips
In this episode, I reflect on my three-month podcast journey and the joy it has brought me. I share my recent travel experiences, revealing how I managed to fly first class for most of my flights using points and miles. I emphasize the importan...
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Season 1
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Episode 13
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22:13
From Pleasing to Peace: Navigating MS and Relationships at 40
In today's episode, I dive deep into how turning 40 has reshaped my relationships and the way I navigate friendships, especially in light of my journey with multiple sclerosis (MS). I'll share the challenges I've faced in maintaining these conn...
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Season 1
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Episode 12
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23:05
Finding Light: My Journey Beyond Sexual Assault
As I dive into the latest headlines, I'm hit hard by the news of Harvey Weinstein's overturned verdict. It's a gut-wrenching reminder of the uphill battle survivors face. Sharing my own story of assault, I confront the power imbalances and syst...
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Season 1
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Episode 11
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28:33
Embracing Resilience: Conversations with Hillary about MS and Motherhood
Come along with me for a heartfelt conversation with Hillary Lofton-Mosley, where we dive into her journey with multiple sclerosis (MS). From the whirlwind of diagnosis to unexpected surprises like a surprise pregnancy, Hillary shares her story...
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Season 1
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Episode 10
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55:57
Shared Courage: My MS Journey Through My Sister's Eyes a Conversation w/ Dr. Alisha J. Hines
In this heartfelt chat, my sister Alisha and I dive deep into the impact of my MS diagnosis on our sisterhood. We go back in time and reflect on the rollercoaster of emotions we've experienced, from denial to acceptance, and how it's resh...
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Season 1
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Episode 9
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45:45
Whatever Your Best Is It's Enough
In this episode, I share a journey that's close to my heart—MS Awareness Month. It's a time filled with activities and events I'm deeply involved in, all aimed at raising awareness for Multiple Sclerosis (MS), a condition that's part of my life...
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Season 1
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Episode 8
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21:00
Catching Up With Lauren Thomas Living and Advocating with Narcolepsy Cataplexy
Curious about life with narcolepsy? Join me in an eye-opening conversation with my dear friend Lauren Thomas. We unpack her journey living with Narcolepsy Cataplexy, from navigating treatment to her unforgettable experience speaking...
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Season 1
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Episode 7
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46:57
Disney Races, Disney Parks, & Some Bravo w/ Kyle Stephen
In this chat, I get real with my friend Kyle about our wild ride with multiple sclerosis and how we tackled the Run Disney Marathon together. Picture this: we met during those crazy pandemic times, thanks to a friend who thought we’d hit it off...
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Season 1
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Episode 6
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53:58
The Isolation of Pain
In this episode, I open up about the silent battles with MS pain and its sneaky way of messing with friendships and daily life. I touch on the tricky bits of explaining what this pain feels like and the extra stuff you've got to juggle when you...
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Season 1
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Episode 5
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21:46
Brain Surgery, Trigeminal Neuralgia, Firing My Doctor
In this episode, I'm letting you in on a journey that turned my world upside down. It's about my fight with trigeminal neuralgia, a term that was as foreign to me as the unimaginable pain it brought into my life. This isn't just a story about p...
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Season 1
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Episode 4
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25:37
Happy V Day!, Dating with MS, Dating in Your 40s
Navigating the dating world in 2024 with a chronic illness is like embarking on an unpredictable journey, where every interaction feels like stepping onto uncharted territory. Gone are the days of swiping right for me; now, it's about finding g...
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Season 1
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Episode 3
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22:35
Barely Making It in 2024, When You Know Something's Wrong But No Doctors Will Listen....
Just wrapped up the first month of 2024, and honestly, it's been a struggle. After enduring 17 long months filled with pain and feeling like no one really got what I was going through, I've finally gotten some answers. But now, I'm...
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Season 1
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Episode 2
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21:45