The Sickle Cell Society is having open discussions about challenging subjects in this podcast.
There are challenges to living with sickle cell disorder, and there are a lot of subjects that aren't openly discussed, in a way that might help others to live their best life with the condition. We are unpicking some subjects by inviting sickle cell doctors and patients onto the podcast couch to share their experiences and answer questions.
About us
We're the Sickle Cell Society, and we're the UK’s patient charity for people living with sickle cell disorder.
We believe that people living with the condition have the right to quality care. We support and represent people, patients and families affected by sickle cell disorder to improve their overall quality of life.
We work with health care professionals, pharmaceutical companies, researchers, parliamentarians, parents, and people living with sickle cell to support and advise, raise awareness of the disorder and campaign for improvements in treatments and care. Our aim is to support those living with sickle cell, empowering them to achieve their full potential.
Freelance journalist specialising in culture, multiplatform Journalist for the BBC, Assistant Producer and Sport Presenter at Riverside Radio, Script and Story Researcher who worked on the development team for the Waterloo Road reboot.
Kesewaa has produced a BBC documentary about sickle cell disorder and is passionate about raising the profile of the condition.
Operations Manager, UK Thalassaemia Society, and lives with beta thalassaemia major.
Amanda works for NHS England in the Antenatal and Newborn Screening Team, and is the Sickle Cell and Thalassemia Screening Programme Manager as well as the Newborn Pathway Implementation Lead.
Eugene is a Consultant Obstetrician with over 30 years of experience in the field.
As an expert in antenatal and postnatal care, Eugene delivers maternity services to women on every level of the health spectrum, and has specialist knowledge in caring for patients who live with sickle cell disorder.
He is head of Obstetrics at Guy’s and St Thomas’ Hospitals in London, and Clinical Director for Women’s Health Services. Eugene is also Professor of Obstetrics at King’s College London.
Professor Eugene became the first black Professor at Guy’s and St Thomas’ Hospital and the first black Professor of Obstetrics at Kings College, London.
Lives with sickle cell disorder, and father of a child who is a carrier of the trait.
Sickle Cell Society's NHS engagement (Screening Programme).
Community Matron for Southeast London for sickle cell and thalassemia services covering Guys, Kings, Lewisham, and Queen Elizabeth Hospitals.
Vice Chair of the UK Thalassaemia Society, and parent of a child living with thalassaemia.