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Rising Up Rare

Giving Hope, Creating Action

The Cure MPS1 Project uses MPS1 family stories and the six degrees of separation to create a movement and cure MPS1.  Each child’s story is a testament to strength, resilience, and hope. By sharing their journeys, we aim to bring awareness to the world and connect people in a way that leads to real action. Through the Kennedy Ladd Foundation, we are committed to raising funds for MPS1 medical research, improving quality of life for affected families, and advocating for newborn screening in every state. Together, we will find a cure.”

Rising Up Rare

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