Rising Up Rare
Giving Hope, Creating Action
The Cure MPS1 Project uses MPS1 family stories and the six degrees of separation to create a movement and cure MPS1. Each child’s story is a testament to strength, resilience, and hope. By sharing their journeys, we aim to bring awareness to the world and connect people in a way that leads to real action. Through the Kennedy Ladd Foundation, we are committed to raising funds for MPS1 medical research, improving quality of life for affected families, and advocating for newborn screening in every state. Together, we will find a cure.”
Rising Up Rare
The Nash Family - Hope For Blayne #CureMPS1Project
Hope For Blayne Facebook page- / hopeforblayne
Hope For Blayne Instagram- / hopeforblayne
Learn more about The Kennedy Ladd Foundation- kennedyladd.org
Learn more about Blayne and the Nash Family- Blayne.curemps1.org
Learn more about The Cure MPS1 Project- Curemps1.org
Blayne Nash is not just another statistic. She is a daughter, a sister, and a light in the lives of everyone who knows her. She was diagnosed with MPS1 Hurler Syndrome, a progressive disorder that affects multiple organs and causes severe physical challenges and developmental delays; at just 5 years old, her journey has already been filled with chemo, a bone marrow transplant, lengthy hospital stays, therapies, and many medical challenges.
Despite the pain, Blayne remains resilient. But without a cure, MPS1 will continue to steal time from her childhood. Every day matters in her fight against this disease.
MPS1 Hurler Syndrome is a rare genetic disorder caused by the body’s inability to break down specific sugar molecules, leading to buildup in organs and tissues. It causes severe physical and neurological symptoms, affecting a child’s ability to grow and develop properly. The impact is devastating, and without proper treatment, the disease progresses rapidly.
But there is Hope. We are moving closer to a cure every day with continued research and treatment advancements. Your support will help accelerate this process and provide families like Blayne's with the resources they need to give their children the best possible care and treatment.
We Need Your Help Now!
This is a cry for help. MPS1 Hurler Syndrome is relentless, but so is the fight for a cure. Your donation can fuel groundbreaking research, ignite a movement, and bring hope to families like Blayne’s who are in desperate need. Together, we can create a future where MPS1 is no longer a life sentence. Let’s fight for a cure.
Donate today and be part of the solution. Every dollar makes a difference. Help us raise $1,000,000 for The Kennedy Ladd Foundation to fund life-saving research and give Hope to children like Blayne.
Learn more about Blayne's story Blayne.curemps1.org
How You Can Help:
Donate Now: Every donation counts.
Share Blayne’s Story: Help us reach more people. Share Blayne’s story on social media with the hashtag #HopeForBlayne and encourage others to give.
Ask Your Friends: Ask 10 of your friends to donate $10. A small contribution from many can create a big change.
Join Blayne’s Team: Fundraise with Us!
Blayne needs a crew, and we’re calling on you to suit up and join the mission! By starting your own fundraiser under Blayne's banner, you’re not just raising funds, you're becoming part of Blayne’s Team, a community dedicated to spreading awareness and fighting to cure MPS1.
Invite your friends, family, and neighbors to rally behind you. Together, we'll move mountains and take huge strides toward curing MPS1. The more people we have on the team, the louder our voices will echo, and the greater our impact will be.