Dis-labled: Disabled Voices, Real Stories
Welcome to Dis-labled, where disabled voices take centre stage. Created and presented by people with disabilities, learning disabilities, autism and long-term health conditions, this is a space to share experiences, challenge stereotypes, and talk about the things that matter to us.
Dis-labled is produced by Community Focus Inclusive Arts, a North London charity supporting adults and young people with additional needs through creativity, friendship and opportunity.
Also broadcast on Resonance 104.4FM.
Dis-labled: Disabled Voices, Real Stories
Coping With Grief: Phillip Opens Up About Losing His Wife
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In this episode of Dis-labled, Phillip opens up about losing his wife Suzy and shares how friendship, support and community have helped him through grief.
The group discusses coping with loss, Disability Pride Month, standing up for yourself and why disabled people should never be afraid to ask for help. We also enjoy one of Richard's famous music challenges and plenty of laughter along the way.
A moving and uplifting conversation about resilience, friendship and finding strength during difficult times.
Project Managers: Andrea Rai, James Corley, & Phil Powell
Editor: Phil Powell
Project Managers: Andrea Rai & Phil Powell
Editor: Phil Powell
Huge thanks to the National Lottery Reaching Communities Fund for supporting our Dis-labled podcast. Learn more about their amazing work: https://www.tnlcommunityfund.org.uk
All enquiries: podcast@communityfocus.co.uk
Website: https://www.communityfocus.co.uk/
Theme Music: Rastko Rasic & the students of Community FocusOther Music: Jazzy Frenchy by Benjamin Tissot
Community focus. Community focused. We're here for you. With me and you.
Speaker 5Our point of you. At five hours. Weekend with you.
Speaker 8We're here for you. Yes. Our point of view.
GilaCommunity focus is an art centre for children and adults with disabilities. We are based in Faboa Farnett, North London, and offered collection of creative and well-being activities for all ages.
MichaelWelcome to the podcast! Here we have today in this room. Philip, Hila, Hather, Bobek, Richard, and myself Michael, Plus, Andrea and James. And we're all gonna have a good time coming to us.
AndreaWell today we're gonna talk about the lost numberine. We'll talk to question time. Having an Andrea jokes about fruit. Philip Brady opens up about Susie. Richard does his party piece. And we talk about wormholes.
JamesOkay guys, so we're gonna crack on with our first topic, which is submarine, right? Submarine.
AndreaTitanic.
JamesTitanic.
MichaelSo well I I have to I have to say that it costs 200 250,000 pounds to visit the uh Titanic. The people were taking the system and suddenly was badly designed, it was very the material was very uncomfortable, it was just limited oxygen tanks, uh it was badly designed, badly constructed and uh and uh although it could be fifty thousand meters was uh very low sea but uh nevertheless I think the management of it would be uh ridiculous I mean the concern people's life was death people die and that was responsibility of the company of whoever was in charge move forward and playing into somebody.
AndreaDo you think people really do need to go and visit it? Can't they just leave it?
MichaelI think it's really but if they want to take that well, it is something why but it's attractive for the people that are very, very rich. Well, yeah, certainly.
AndreaYeah you know, it's people with money, people with lots and lots of money think they can do anything. Yeah, anything, but unfortunately it doesn't work out sometimes, does it? No.
JamesBecause how much was a ticket?
MichaelI didn't know just £250,000.
James£200, so what could you do with £250,000? What would you all do with that money?
HavvaI'll buy myself a racehorse. Brilliant, would you? No, well yeah, I'll give him my racehorse. Yeah. I'll give him a nice name.
AndreaWhat was the name?
HavvaHercules.
JamesOh, that's a great name.
AndreaOh, lovely.
JamesThat's a great name, Habba. Yeah. Hercules the racehorse.
AndreaYeah, Ray Clearly. Haber's Hercules. Hercules.
Phillip RIf I had if I had that money, I would go to the Formula One. I love the Formula One. That'll be an experience. Lewis Hamilton, my Lewis Hamilton. I would support him. Definitely. He's my favourite.
MichaelThat's not gonna cost you too much.
Phillip RNo, but I love I love the formula. I love the Formula One, it's lovely, you know. I love it. I can't I can't do our people on the bench.
JamesNo, no, no. How about what what would you buy with 250k?
GilaThat's nice. Um if I have that kind of money, I would probably save it and then if I really need it, then either buy a house or buy a car, but I can't fly because I don't know my left or my right.
JamesUm I mean you could buy a house, that's saying something. You could buy a house, but these but you know, these millionaires, billionaires e even, they went down into the depths. Yeah.
GilaThey really they did not really have to.
JamesThey didn't have to. No, they didn't, they didn't have to. They didn't have to. Yeah, you know, it's um and when you think about the amount of people who die at sea every day and we don't know about them.
GilaAnd still died.
JamesAnd still die in sea.
AndreaNo, it's like all these poor immigrants that's washed on the boat. Oh yeah. You know, would they do the same search if any of those fell in the sea?
JamesYeah, so why are we interested in that? Well, why is the journalism about that?
Phillip RBecause all is all all they want is making money, money, money. Do you understand what I mean? I do, yeah. Yeah. But don't but what get us me? I don't know about you for you look. But what about what get us me? I pick disabled people. Don't get much money. And yet all the others do. Do you understand what I mean?
MichaelYeah.
unknownYeah.
JamesI think that's a really, really important point.
MichaelI mean, I shouldn't really say this, but there are people struggling in the breaking money. Yeah, yeah. Yeah. I think everyone's gonna say I shouldn't really say that. That's what I think. I mean people on the break. But I mean it's true, I'm not gonna understand.
JamesHave a what do you think about the submarine?
HavvaIt's very sad. People died in the war.
JamesWell, this wasn't the war, this was It blew up. It blew up underwater. Under the water, yeah.
HavvaSo many people died. I'm sorry for them. You've got a nice family as well. Yeah.
JamesYeah, you've got to think about the families, don't you?
HavvaYeah, the mothers and the fathers and the children, and there's the sons, the lost them.
JamesOh, I have a yeah.
HavvaThey seem like nice people actually. Oh no, they're nice people, yeah.
JamesSo we need to be informed about current events.
Speaker 11Yeah.
JamesAnd what do they do on question time, Philip? What do they do on question time?
Phillip ROh, they're the audience and uh and a panel of of of uh of um oh last night they had they had someone from um Formula One on last night, yeah. Really? Yeah. No there was a Prime Minister on there, I can't remember his name.
Speaker 11Boris Johnson?
Phillip RNot Boris Johnson, no. David Cameron? No, no. John Major? No. He he he did um There's trust, there's been so many, huh? Can you trust it? Can you trust it? Sorry? No, can you trust it though?
JamesOh no I can't absolutely not. Um That's alright, it was yeah, it's very good.
Phillip RYeah I it started eight. So he's a mate. May not, may not, or may not.
HavvaI like crepes. I like crepes, I like grapes.
AndreaStrawberries.
HavvaMelon? Melon is kind of canonal. Have it. You really sound like Rich really funny. Um like strawberries. I like strawberries. Um do you like peach? I like peach. I like mango. I like applicable mangoes.
Phillip RMangoes I'm a bit I've been a bit tearful. Because of uh because of my late wife. It would have been her birthday yesterday. My busy Susie.
JamesYeah.
Phillip RDuring the 20th on June this year, the two things happened on because it would have been our wedding anniversary, mine and Susie's wedding anniversary, on the 14th of June. And it would have been she died on the 23rd of June.
Speaker 11Yeah.
Phillip RWe were together eight years, married for five years.
JamesIs there any tips that you can give us if we're struggling with um grief or sad feelings?
Phillip RWhen I first when when Susie f when when Susan died, I didn't know what to do with myself. Do you want me to start on me? I didn't know where where to go or anything, got me. But at least I had my my car Betty with me. At the time, got me, and she'd been there for me, you know. Do you know what? Being I can't say. Being with with all my friends and colleagues, it's so lovely, you know? That's what I have. But when but when I first when up yesterday when I came, uh James, I didn't know whether to come on or not because of you know I don't want to inter interrupt the group or anything, do you know what I mean? But I'm glad I came this day, you know.
JamesOh, Philip, you are an inspiration to all of us, and I mean that. Yeah, yeah. Yeah.
Phillip RThank you, thank you.
MichaelAnd as I said, uh Phil is very brave. I could say that. You are, yeah, yeah. You're all against all the odds, you're yeah, you've made it.
JamesYeah, you are very brave. Yeah.
MichaelNow Richard is going to do his party piece of records from the past.
AndreaRichard, do you think you can maybe name a few T uh songs?
RichardSolo or with Ike or both.
AndreaUm solo, yeah.
RichardLet's stay together, yeah. Help. What's Love Got to Do with It? I don't know what it is. Yeah. Private dancer. Yes. Oh private dancer. We don't need another hero. Yeah, no. Mad Max. Typical male? Oh yeah.
MichaelI don't know how she's saying that.
RichardThe best. Simply the best, yeah. Stevie Windows.
Speaker 8Yeah. Yeah.
RichardNo. Disco Inferno.
Speaker 8Yeah.
RichardOh. I think that's all she had.
Speaker 8Very good, that looks very good.
RichardOh that was with Ike.
AndreaOh, was that?
JamesBut like very eyes, very nice. Yeah, so how do you all feel about the the passing of the Living Legends of Tina? She was 83.
HavvaYeah, very sad, very sad. Tina Turner. Tina Turner died. But you start the owner box died, let's start.
AndreaYeah, yeah, it's a few connects.
MichaelYeah, yeah, David Bowie.
AndreaDavid Bowie.
JamesBut you know, it's about celebrating the gifts that these artists give us. Yeah, yeah. Um when we need our cultural richness, you know. Yeah, yeah, yeah. What's left of it? What's next to it? So who can describe to our listeners what the day is like outside?
HavvaDry. Nice and dry. Yeah, for a change. Yeah, no rain today, not snow. There's no clouds. It's all blue, isn't it?
MichaelIt's all sky and blue. Yeah. Well I've come through the clouds.
RichardIs it warm or is it clear?
Phillip RIt's sunny, it's sunny. Sunny.
RichardYeah, they said the weather would be warm, dry, and sunny for the rest of this week and into the weekend. It's windy.
Speaker 10It's windy, it's windy.
RichardAt least into next week. Okay.
AndreaDo we believe the weather then?
HavvaNot really.
RichardI don't believe it. The forecasts are not always.
MichaelI think it's shouldn't we start climate change? No, because we had no water last week.
JamesHere's what a wormhole is. It's a hole in a mole. What is a wormhole? What is a wormhole?
Phillip RIs it a worm in a hole?
JamesIt could be. I mean that's where my mind goes. There's actually a whole scientific thing around it. About you said it quite well.
AndreaYou go in this whole the tunnel and it transport you transports you into a different dimension or a different world.
MichaelIs it how shoe? But it's it's it's like it also uh contacts you to other planets as well, I think.
AndreaWell So if you could if you could jump into a wormhole, where would you like that wormh where would you like to go?
HavvaTo Ireland.
AndreaTo island? Would you like to visit Ireland?
HavvaYeah.
AndreaHave you been before?
HavvaNo, I've been before.
AndreaWhat would you like to do there?
HavvaI'd like to go down the island on the on the sea.
unknownYeah.
HavvaWith coconuts on it.
AndreaOh lovely.
HavvaOnly by itself. That's all. Only little fishes. Yeah.
AndreaPalm trees.
HavvaThat's it.
AndreaWhat would you take with you?
HavvaWell, I'll take with me. Yeah. Um I'm not sure really. I did not think about that.
unknownHa!
HavvaOh, a little boat.
AndreaYou take a little boat? Yeah.
JamesThat's sensible.
AndreaWould you take your lunch?
JamesMy lunch?
unknownYeah.
AndreaWhat about you, Babang? If you had a chance to jump into a warehouse, where would you like to go?
BabakGuinness factory.
AndreaYou want to go to the Guinness Factory?
BabakOh!
JamesWhat would you do in the Guinness Factory? Well, what would you do once you've So you've you've gone through the wormhole when you're in the Guinness Factory? Have a drink. Have a drink.
AndreaSample, sample.
JamesI've been there anyway.
HavvaI've never been there.
AndreaWhere's the Guinness Factory?
RichardIreland.
AndreaOh, so you've been to Ireland?
RichardWhereabouts in Ireland? Whereabouts? Dublin. I've been to Dublin.
BabakThey give you like a free ticket.
HavvaOh, a free ticket, oh. I've never been to Ireland, I've never been.
AndreaSo Richard, you've jumped down that wormhole. Where would you like us to take you? Barbados.
unknownOh god.
Speaker 8Barbados.
JamesI'm going to Barbados. That would be nice. I think I might join you on that one.
AndreaYeah, it's enough room for me.
JamesHow quick does a wormhole take when you go through a wormhole? Is it instantaneous?
AndreaYeah, it's quick, isn't it?
JamesIt's very quick, yeah. It's very quick, is it?
BabakIt's like a maze, isn't it? Yeah, it's a bit like a maze. I've been there. You go underneath and you go up again, huh?
HavvaYeah. You've been down a wormhole? Have you? I've never been. I'm so jealous.
JamesCan you tell us where it's where it is so we can all go? To the wormhole.
BabakThat was with the collar uh with the Guinness track on the hole and come up again.
MichaelYeah.
AndreaAmazing.
MichaelI'd like to go to another solar system.
AndreaI'm gonna go to solar system.
MichaelTo another one. Which one? I don't know what to tell me. I'm not sure there's so many, isn't there?
JamesThere's so many. Do you any of you think about the universe?
MichaelOh I do, yeah. Do you what's his name? Professor oh what's his name? Erwin, no, Professor Cox? Yeah, he does very good documentaries, isn't it? He does. He's very interesting, yeah.
AndreaSo Phil, what about you? If you jumped into that wormhole, where would you like to take you?
Phillip ROh, to Africa.
AndreaSo your family. Whereabouts in Africa?
Phillip RNo, Nibia, in Africa. Namibia. Yeah, in Africa. Yeah. See my back my my Becky and the kids. My family, yeah. Because you go once a year. I've got yeah, I've been adopted by the family. It's very lovely, you know? They see me as part of the family. Certainly. And must be very very hot. Yeah, but I I I just love it up there, you know? It's just it it you get a nice warm welcome, and the kids are lovely. Especially the little one, Daniel. He's one he's money money as old as he is. I just feel, do you know what? I ever since I left home, all those years ago, I feel complete. I feel up by people, and I'm happy.
Speaker 11Yeah.
Phillip RAnd touch wood, touch wood, not touch wood. No no seasons, no bits or anything since I left home.
MichaelJust amazing what the body can do. Yeah. Or what your mind can do.
Phillip RYeah, that's right. Just amazing. Don't know anything about the brain.
BabakSo how are you feeling now or are you coping with it or the situation?
Phillip RBut I still I still it still goes through my mind sometimes. It's still I still think about it. Think about it. Am I being silly?
Speaker 11No. No, no.
Phillip RAm I being silly? Going over and over again? No. No.
BabakSo are you coping okay or are you are you bit done or have you got friends to talk to or not? I've got loads of friends to talk to.
Phillip RI've got loads of friends. Do you work or do you? I've got my I've got my su my um my uh support workers from your p from B PA choices, you know. They've been a great help to me as well. How are you feeling in general yourself? Yeah, I feel I look forward to going home. I look forward to going home. I feel complete. I love going home, go you know. I don't well once a month I go to Comedy Evening once a month with my friend Dave Nyman. We have milk mil have some people up there, you know. Once a month. And uh uh Queens are pub in partners. And um I come here to twice.
BabakYeah, there's a question I want to ask you.
Phillip RDo you go for mills or yeah, yeah, we do go for mills, yes.
BabakYeah, do you go to like us buffies or Chinese or no not buffy.
Phillip RNo, I used to.
BabakYou got buffies yourself.
Phillip RYeah, I do, yeah. Yeah, I'm a buffet, yeah, I like my I've a I like my food, you know. But I feel but I never knew what life was until unless until I left home.
Speaker 11Yeah.
Phillip RAnd that video I made about my last story.
AndreaWhat do you think about vaccination together? Very good. I like it.
BabakVery good.
Phillip RYeah. If it wasn't if it wasn't for my my zimmer, I've got my zimmer with me. I don't know what I'd do. I feel I go frame. My frame, my zimmer, yeah. You've been framed, eh? No, but I I just feel I feel complete, you know what I mean? I should do a walk. Do you have the ability to walk? Yeah, I do, yes, I can walk, yeah. Yeah, which is with me, because of my of my disability, I've got a cerebral palsy down my right side. My right foot goes over sometimes, you know. That's why I wear this caliper on my foot at all.
AndreaRegion amazing, Phil and thank you so much for watching. Thank you guys. Thank you.
JamesSo it's disability pride month. Think about having a month that is devoted to, you know, the pride of being disabled, right? Or the pride of um having a condition. Um because I think it's not often we put those two words together in society, but it's an opportunity to perhaps feel really proud about.
AndreaIt says here, disability pride month is celebrated every July, and there's an opportunity to honour the history, achievements, experiences, and struggles of the disability community. And in America, in July, it marks the anniversary of the Americans with Disabilities Act, landmark legislation that broke down barriers to inclusion in society.
JamesWhat does that mean to you guys?
MichaelWhich city was that happy?
AndreaPardon?
MichaelWhich city was that heavy?
JamesI think it's America in general. Yeah, oh really.
AndreaAnd um there's lots of things that they're doing over there to celebrate. Um they want people to share their stories so they can help somebody with theirs. Um like to teach the children to help them acknowledge to include disabled people. Phil, do you want to explain how would you if you have this opportunity to teach a group of children about disabled people?
Phillip RHow would you um Right, I would I would I'll get the I'll I'll ask the kids sit them down and tell them that disabled people have the right have the right to be independent and do what they want. And some kids are take the Mickey out this at the way disabled people are. And they shouldn't. Because I think they never they don't know they they might be disabled yourself one day.
JamesAnd if these kids were disabled how would you what how would you want them to be educated if if you had the power to help children with disabilities to be I would I I would say to them you've got to stand up for yourself.
Phillip RYou've got to stand up for yourself. If you don't stand up for yourself you don't get anywhere.
MichaelThat's very true.
Phillip RYeah yeah and it doesn't matter what how you what how you are what you are it it's it's it's nature do you know what I mean? It's just how how you we were brought up yeah and people think because you've got a disability you can't think for yourself but you can don't let anyone down say that you can't think for yourself or do things for yourself but but you can you've got to be strong you know healthy and just be happy you know you've got to be happy I think that's a really powerful message thank you.
JamesYeah so standing up for yourself and being happy I love that.
Phillip RBecause if you just don't stand up for yourself you don't get anywhere.
MichaelNo stand up for your rights.
Phillip RFor my rights yeah that's right yeah Bob Marley song.
JamesYeah stand up for your rights yeah Bob Marley yeah for the people who stood up for for the rights for equal rights and um the one song that really caught me caught you know something is it's Levy Sicily, something inside so strong.
Phillip RThat's it it said I know I can make it that you're doing me wrong so wrong. I thought my pride was gone oh no then said brothers and sisters Wendy and sis we're just not good enough but we know better. Just look in the eyes and say I'm going to do it anyway.
JamesThat's a beautiful song. Yeah.
Phillip RThank you.
MichaelWell yeah well my first experience in the workplace was with self adjuster. I worked in the kitchen before I don't know why I did it and I used to my mind was all over the place you know and I used to smash plate plate some accidentally loads of them and was it as smashy time? It was as fashy not for the plates. No no and then they then they put me in the toy department because they kicked me out and in the toy department I just played with the trains you know and uh played with the toys and that's that was the best thing about salvages. Now for then another job I went for was Mossboss. The other um the men's way company I I worked in the uh the wedding section where I I fitted up the men in the in the in their suits for for weddings you know and uh they used to give me tips but we had the manager and he he he used to scream at us but didn't put fingers away and so I shouted at him back I said to him I'm linked and yeah but I mean I don't like that people that you stood up yourself too yeah yeah I never went back I mean it's a horrible place to be I I I mean the the the clients or the people they were very nice you know they would give you tips the guys would give you tips but the manager was a monster you know so I I told them I I told them what I thought of them.
JamesWell it's a very common story to have managers I'm sure we can all relate to that at some point in our lives.
MichaelThat's very yeah but I mean as uh stand up for for yourself it's feel safe.
Phillip RYeah definitely doesn't matter if they're manager uh government I don't know society you have the power parents you have your own power yeah yeah yeah you you got you got a problem don't worry about it you can ask the teacher to help you like I do they helped you know that don't be afraid to ask it's your sabled you can't do things don't worry about it don't be scared or your mum can help you and your dad and the teacher can help you as well well thank you have her that's alright we're welcome very thank you having me thank you having me don't be scared I just asked somebody to help you like I do on the cheaters around that's fine don't be straight to ask some absolutely what I used to say there's always worth people up and yourself yeah that's it yeah yeah you're dependent yeah you can deny me you can decide to turn your face away yeah no matter because I'm the inside so I know that I can make it do the mini wrong so wrong I thought the microphone was done oh no stop the inside soa whoa stop the inside so amazing well done it's ever communicate focus community oh good we're here for you with me and you all point of you at five years that is the podcast a week in with you we're here for you all point of you I walk you hooray I won't