The MEN1 Mosaic
This podcast's mission is to raise the quality of conversation in MEN1, opening up the floor to diverse perspectives in this rare disease, hence the name 'mosaic.'
With guest speakers encompassing patients & practitioners from all areas of expertise, join a curious, open-minded & proactive discussion amongst a different kind of MEN1 community.
*This podcast and any affiliated content is personal experience designed to educate and inform, not to provide medical or health advice. All opinions are personal. Always consult a qualified, medical professional, especially before making any changes to your diet, exercise or lifestyle.*
The MEN1 Mosaic
#27 - MEN1 & The Fraudulent Feeling – What No One Talks About (Patient Advocate & NCUK Ambassador)
Ever felt like a fraud when it comes to your health? Like you’re not “sick enough” to ask for help, or that others have it worse?
In this episode, I sit down with Simon, a MEN1 patient advocate and NCUK ambassador, to unpack "the fraudulent feeling"—the struggle of living with an invisible illness while looking "fine" on the outside.
We discuss:
- How Simon went from a **diagnosis with no symptoms** to facing major health challenges
- Navigating work, medical retirement, and the importance of self-advocacy
- The **emotional toll** of MEN1 and why patients often feel like impostors
- How to balance resilience with asking for help
- Practical advice for creating a support network and working with your medical team
Join the conversation and know that you’re not alone.
Join my close MEN1 community for support & discussions here
ABOUT OUR GUEST
Simon is a NCUK ambassador and MEN1 patient advocate. He writes fantastic blog articles from time to time. Click the links below:
Finding a New Role in Life After Cancer
That Fraudulent Feeling
Join my MEN1 community & receive the free guide that helps keep me out of surgery, off medication and asymptomatic. Click here.
*Here I share my personal experience as a MEN1 patient. Nothing is intended to provide medical or holistic health advice. All opinions are personal, including those of my podcast guests. Always consultant a qualified medical professional.*