The MEN1 Mosaic
This podcast's mission is to raise the quality of conversation in MEN1, opening up the floor to diverse perspectives in this rare disease, hence the name 'mosaic.'
With guest speakers encompassing patients & practitioners from all areas of expertise, join a curious, open-minded & proactive discussion amongst a different kind of MEN1 community.
*This podcast and any affiliated content is personal experience designed to educate and inform, not to provide medical or health advice. All opinions are personal. Always consult a qualified, medical professional, especially before making any changes to your diet, exercise or lifestyle.*
The MEN1 Mosaic
#31 - Fighting or Managing MEN1? Balance Changed Everything (MEN1 Patient, Mother, Sister & Daughter)
Is there a difference between fighting MEN1 and managing it? Tori, a fifth-generation MEN1 patient, shares her incredible journey of balancing proactive healthcare with living a full life. From navigating aggressive treatments to learning when to step back, she opens up about what it means to take control without letting MEN1 define her.
In this episode, we discuss:
- Growing up with MEN1 and learning from family experiences
- The challenge of balancing aggressive treatment vs. proactive management
- How to build a strong support network and find the right doctors
- The emotional exhaustion of lifelong illness—and how to handle it
- Why "watch and wait" isn't always the only option
If you've ever felt overwhelmed by MEN1 or struggled to find the right approach to managing your health, this episode is for you.
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*Here I share my personal experience as a MEN1 patient. Nothing is intended to provide medical or holistic health advice. All opinions are personal, including those of my podcast guests. Always consultant a qualified medical professional.*