The MEN1 Mosaic
This podcast's mission is to raise the quality of conversation in MEN1, opening up the floor to diverse perspectives in this rare disease, hence the name 'mosaic.'
With guest speakers encompassing patients & practitioners from all areas of expertise, join a curious, open-minded & proactive discussion amongst a different kind of MEN1 community.
*This podcast and any affiliated content is personal experience designed to educate and inform, not to provide medical or health advice. All opinions are personal. Always consult a qualified, medical professional, especially before making any changes to your diet, exercise or lifestyle.*
The MEN1 Mosaic
#33 - They Told Me I Was Just a Tired Mum… Then I Got an MEN1 Diagnosis (MEN1 Patient)
For years, Holly was exhausted—so tired she could barely get through the day. Like so many others, she was told it was just the reality of being a busy mum. But deep down, she knew something wasn’t right. When a routine blood test revealed high calcium and parathyroid hormone levels, everything changed. What followed was a whirlwind of tests, miscommunication, and self-advocacy that ultimately led to an unexpected MEN1 diagnosis at 41.
In this episode, Holly shares:
- How she pushed for answers when doctors dismissed her symptoms
- The shocking moment she learned she had MEN1—and how she found the right information
- The importance of advocating for specialised care (and why she refused to settle for less)
- The unexpected challenges of navigating genetic testing and family implications
- Why she believes every patient needs to empower themselves and ask questions
If you’ve ever felt unheard in your health journey, this episode is a must-listen.
RESOURCES
Reach out to Holly here
Maternity and Neonatal Voices Partnerships (MNVPs or MVPs)
Are you sure MEN1 can’t be influenced?
When I stopped just 'settling' for symptom management, I began carving a path to somewhere I believed impossible in MEN1: symptom-free, surgery-free, and medication-free. If you’re curious to see how I’m making this happen, join my community here.
Disclaimer
I share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.