Tiny Little Hearts Podcast: CHD and Heart Mom Life
Tiny Little Hearts Podcast is your honest, unfiltered space for the CHD (congenital heart disease / congenital heart defect) community. Whether you're a heart parent, a CHD warrior, or someone newly navigating a complex congenital heart diagnosis — this podcast was made for you.
Hosted by Katelyn McMahan, a mom of three girls whose world changed the moment she learned her youngest daughter had complex cardiac abnormalities. She searched for real stories — kids with complex CHD, single ventricle hearts, hypoplastic left heart syndrome, and other congenital heart defects— not the polished highlight reels, but the honest, raw truth of what this life actually looks like. She wanted to prepare her heart for the good, the bad, and the ugly.
Each episode features conversations with heart parents, CHD adults, providers, and others navigating the deeply real world of congenital heart disease, open heart surgery, and medical complexity. You'll hear practical advice, emotional honesty, and stories that remind you that you are not alone in this journey. Because this life is hard — and you deserve a place to feel seen.
Topics covered include: CHD diagnosis, heart surgery recovery, parenting a medically complex child, grief and resilience, NICU and PCICU experiences, fontan circulation, cardiac catheterization, and life after a congenital heart defect diagnosis.
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Tiny Little Hearts Podcast: CHD and Heart Mom Life
7. Hypertrophic Cardiomyopathy: The Development of HeartCharged
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In this conversation, Katelyn sits down with Hannah Keime from HeartCharged. Hannah Keime was unexpectedly diagnosed with hypertrophic cardiomyopathy (HCM) her first month of high school. A year later, she received an implanted defibrillator due to the severity of her condition. Within months, it saved her life when she went into sudden cardiac arrest in her sleep. Hannah created the organization HeartCharged with her sister, Bethany, who also has HCM and an ICD. They have won a number of awards and international recognition in pursuit of their mission to offer patient-to-patient support and end preventable deaths. They discuss the realities of life with
Follow Hannah on Instagram @HeartCharged which is their welcoming and responsive hub. You will find a real and raw look at life with cardiomyopathy.
Follow Hannah and Bethany on Instagram
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This episode was brought to you by the Pivot Ball Change Network.