Tiny Little Hearts Podcast
This podcast is about Congenital Heart Disease (CHD), complex medical journeys, parenting through uncertainty and the deep resilience of walking through big life changes.
Hosted by Katelyn McMahan, a mom to three girls whose life was changed in an instant when she found out her youngest daughter had complex cardiac abnormalities. She went searching to hear about kids with a similar diagnosis and wanted to see the life they were living. She didn’t want the curated, polished stories so she could prepare her heart for the good, bad and ugly.
This podcast does just that and highlights conversations from individuals, parents, medical providers, and others navigating the very real and overwhelming world of congenital heart defects and other medical complexities. You’ll hear honest conversations, practical advice and space to feel seen and understood.
Episodes
11 episodes
10. A Cure for Cora: From HLHS Diagnosis to Delivering Hope with Community and Advocacy
In this conversation, Katelyn McMahan speaks with Allison Millar, a fellow heart mom, about her daughter Cora's journey with hypoplastic left heart syndrome (HLHS). Cora is now three and a half, and has undergone two surgeries. Allison and Kate...
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Season 1
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Episode 10
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39:18
9. Heart Like a Mother: From Personal Journey to Community Mission with Amelia Woods
In this conversation, Katelyn McMahan speaks with Amelia Woods, a fellow heart mom and founder of Heart Like a Mother. They discuss Amelia's son Henderson's journey with congenital heart defects, the importance of community support for parents ...
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Season 1
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Episode 9
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27:17
8. The Quarterback of Complex Care: How Primary Care is More Than Check-Ups with Dr. Jennifer Cropp
In this conversation, host Katelyn McMahan speaks with Dr. Jennifer Cropp about her personal journey with her son's heart condition and the importance of building connections in pediatric care. They discuss navigating the complexities of health...
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Season 1
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Episode 8
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33:40
7. Hypertrophic Cardiomyopathy: The Development of HeartCharged
In this conversation, Katelyn sits down with Hannah Keime from HeartCharged. Hannah Keime was unexpectedly diagnosed with hypertrophic cardiomyopathy (HCM) her first month of high school. A year later, she received an implanted defibrillator du...
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Season 1
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Episode 7
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31:05
6. Fetal In-Utero Intervention: Our Boston Story
In this episode, Katelyn McMahan and her husband recount their transformative journey to Boston Children's Hospital for a life-saving in utero procedure for their daughter Goldie, who was diagnosed with congenital heart defects. They shar...
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Season 1
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Episode 6
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43:23
5. Positive Impacts of Medical Play with Mary Jenner
In this conversation, Katelyn McMahan sits down with Mary Jenner, a former pediatric oncology nurse and the owner of The Butterfly Pig, a company dedicated to creating medical toys that make healthcare more child-friendly. They discuss the impo...
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Season 1
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Episode 5
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21:58
4. Walking Before Goldie: My Dad's CHD Journey
In this episode, host Katelyn McMahan interviews her father, Steve, about his experiences growing up with congenital heart defects (CHD). They discuss the medical challenges he faced, the advancements in cardiac care over the years, and the emo...
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Season 1
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Episode 4
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18:23
3. Living with a Single Ventricle: Lauren’s Story
In this conversation, Lauren Celeskey Bednarz shares her journey living with a congenital heart defect, specifically a single ventricle condition. She discusses her early diagnosis, the challenges of growing up with a heart condition, the dy...
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Season 1
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Episode 3
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28:51
2. From Diagnosis to Advocacy: A Heart Mom's Perspective with Sarah Michelle Boes
In this conversation, Katelyn sits down with Sarah Michelle Boes, who shares her journey as a mother of a child with congenital heart defects. Sarah discusses the unexpected diagnosis of her daughter, the emotional and psychological challeng...
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Season 1
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Episode 2
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38:13
1. Navigating Congenital Heart Defects
In this episode, host Katelyn McMahan shares her personal journey as a mother to Goldie, who was diagnosed with congenital heart defects during pregnancy. She discusses the emotional impact of the diagnosis, the medical complexities involved...
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Season 1
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Episode 1
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25:48