The Voices of MED13L

"The Voices of MED13L" is a podcast dedicated to raising awareness, sharing stories, and building community around MED13L syndrome—a rare genetic disorder that affects development and communication. Each episode highlights the voices of families, experts, and advocates working to understand and navigate life with MED13L. From personal journeys and medical insights to educational tools and research updates, the podcast offers hope, support, and connection for anyone impacted by this rare condition. Whether you're a parent, professional, or simply curious, "The Voices of MED13L" is a space to listen, learn, and stand together in the face of the unknown.

Visit us at www.med13l.org

X: @med13l_fdn

Guest

Michelle Seaver

Michelle Seaver is a licensed therapist based in Connecticut and the proud mom of twin daughters, Ella and Sophie. Ella was born with MED13L syndrome, while her sister Sophie is not a carrier. Through her personal journey and professional expertise, Michelle brings a deeply informed and compassionate perspective to the MED13L community.

Michelle has been a dedicated supporter of the MED13L Foundation, generously lending her clinical insight, personal story, and ongoing support to help families navigate the emotional and practical challenges of a rare diagnosis. Her commitment to advocacy, connection, and mental health has made a meaningful impact on the Foundation and the families it serves.

Guest appearance on:

Growing Up With MED13L: Life at 16