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The Voices of MED13L
"The Voices of MED13L" is a podcast dedicated to raising awareness, sharing stories, and building community around MED13L syndrome—a rare genetic disorder that affects development and communication. Each episode highlights the voices of families, experts, and advocates working to understand and navigate life with MED13L. From personal journeys and medical insights to educational tools and research updates, the podcast offers hope, support, and connection for anyone impacted by this rare condition. Whether you're a parent, professional, or simply curious, "The Voices of MED13L" is a space to listen, learn, and stand together in the face of the unknown.
Visit us at www.med13l.org
Follow us on Instagram & Facebook: @med13lfoundation
X: @med13l_fdn
The Voices of MED13L
Latest Episodes
May is MED13L Awareness Month
An Honest Look at MED13L, Our Community, and the Foundation Behind ItMED13L Awareness Month Special | May 2026This Awareness Month, host Vanessa Dias gets honest — about the spectrum of MED13L, the families the found...
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Growing Up With MED13L: Life at 14
Growing Up with MED13L: Life at 14In this episode of Voices of MED13L, we continue our Growing Up with MED13L series with an honest look at the teenage years. Host Vanessa Dias is joined by Chelsea and Vern Klass...
Growing Up With MED13L: Life at 16
In this episode of Voices of MED13L, we continue our series Growing Up with MED13L with a powerful, in-depth look at the teenage years. Host Vanessa Dias is joined by fellow MED13L parent Michelle Seaver, who shares ...
Why the MIND Study Matters: Building Clinical Trial Readiness for MED13L with Abigail Svedeen, MS, CGC
Why the MIND Study Matters: Building Clinical Trial Readiness for MED13LIn this powerful and informative episode of Voices of MED13L, Vanessa sits down with Abigail Sveden, MS, CGC, a genetic counselor at the Bosto...
Kathleen Boychuck, Chair of The MED13L Foundation
Co-host
Vanessa Dias, Vice Chair of The MED13L Foundation
Co-hostPodcasts we love
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