originALS: more than ALS
originALS: more than ALS steps into the world of the incredible people affected by Amyotrophic Lateral Sclerosis or ALS. In each episode, hosts Flynn Mason and ALS Canada Community Ambassador Hayley King highlight firsthand experiences of one special guest. From the challenges of diagnosis to the passions that make each one of us unique, you’ll hear stories of hope for all that is possible, even in the face of a devastating disease. Whether you’re here for inspiration, to learn more, or to feel the power of a community coming together, originALS: more than ALS is for you.
Episodes
8 episodes
Jodee Karlowsky - Speak Your Truth
"...even if my voice waivers, I'm still going to speak out and I'm speaking out because Greg can't speak."There are many words one could use to describe Jodee Karlowsky - creative mind, passionate lea...
Paula Trefiak - Everything In My Power
“I am now proving this disease is treatable.”75% of Paula's extended family on her father's side is affected by familial ALS. Diagnosed in 2016, Paula has found life-saving treatment in the form of Tofersen, the first gen...
Shawn Penno - What You Can, While You Can
"I want to do it. Give me a minute. I’m looking disabled, it might not be graceful, but I want to do it. Or at least try to do it.”Shawn Penno is a bright light of positivity in the ALS community. After his diagn...
Candid Conversations - Remembering Eric Dane
" ...to be vulnerable like that, I think it's just all a part of the advocacy and trying to do what people in the ALS community have been trying to do for generations, which is to, you know, generate awareness and some level of understan...
Rick Zwiep - Nothing About Us, Without Us
"I sometimes maybe exaggerate a little too much how well I'm doing when I'm not really, just to give people the permission to engage. You wouldn't know thatI can barely brush my teeth anymore."After Rick Zwiep's diagn...
Lea Storry - Grief is Like a Backpack
"When you're caring for somebody living with ALS, it's going to be tough. You can't imagine it. You can't explain it. But being there for the person after they're gone, it'll mean the world to you."Lea Storry, believe it ...