Thriving in The Rare: Journeys of Resilience and Growth
Thriving in the Rare is a podcast dedicated to amplifying the voices of individuals living with rare diseases and complex chronic conditions. Through candid conversations with patients, caregivers, and advocates, this series explores what it truly means to move forward in the face of uncertainty, loss, and change.
Each episode highlights personal journeys of adaptation—navigating diagnosis, redefining identity, managing invisible symptoms, and finding new ways to live meaningful, connected lives. Guests share how they have transformed challenge into purpose through advocacy, creativity, mindfulness, community, and self-discovery.
Together, we examine the physical, emotional, and social realities of living with rare conditions while focusing on resilience, empowerment, and the possibility of growth beyond diagnosis.
This podcast is for anyone impacted by rare disease—whether you are living with a condition, supporting a loved one, or working to improve care and awareness—seeking connection, understanding, and hope for the road ahead.
Thriving in The Rare: Journeys of Resilience and Growth
Latest Episodes
Advocating in the Invisible: Thriving with CRPS and Blindness
In this episode of Thriving in the Rare: Journeys of Resilience and Growth, we sit down with Nickie Coby to explore her lived experience navigating blindness and Complex Regional Pain Syndrome (CRPS), a rare and often misunderstood neu...
