Heart to Heart with Anna

Gastrointestinal Issues and Feeding Tubes in the CHD Community (Remastered)

November 03, 2019 Season 2 Episode 7
Heart to Heart with Anna
Gastrointestinal Issues and Feeding Tubes in the CHD Community (Remastered)
Chapters
Heart to Heart with Anna
Gastrointestinal Issues and Feeding Tubes in the CHD Community (Remastered)
Nov 03, 2019 Season 2 Episode 7
Christie Saunders and Sabine Marinschek
Heart Mom, Christie Saunders, and NoTube Clinical Psychologist, Sabine Marinschek, talk with Anna about how children with congenital heart defects can develop gastrointestinal issues and require feeding tubes and they share how these children can eventually be weaned from their feeding tubes.
Show Notes

According to Corience: An Independent European Platform on Congenital Heart Defects, "As many as 40–60% of children with congenital heart defects are undernourished."
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Healthy babies double their weight in 6 months; however, children with congenital heart defects put on weight more slowly. Their growth is also affected by the heart defect.

Why do children with congenital heart disease not grow as other children do? The answer is because the heart defect makes them need more energy. Their diagnosis might also complicate feeding for several different reasons. Heart failure makes them too tired to feed. Some of them might have trouble keeping down their feeds. Others seem to have difficulty in coordinating breathing and nursing.

This episode will investigate what kinds of equipment might be needed to help a babe with a congenital heart defect if that baby cannot nurse or feed normally. Listen as one mother shares her experience with her baby -- who needed a feeding tube. We'll also talk with a clinical psychologist who specializes in early infancy and childhood as well as eating disorders and tube feeding. She works for the NoTube Limited Liability Corporation, which was founded to help children all over the world to overcome the severe condition of tube dependency. Discover how one mother and a company over six thousand miles apart helped one little boy wean successfully from his feeding tube without ever leaving home! The show originally aired on 7/8/14. Please keep in mind that prices quoted may be quite different now!

Links mentioned in our show:

http://www.corience.org/living-with-a-heart-defect/parents/heart-childrens-health/feeding-problems/

(Corience: An Independent European platform on congenital heart defects: For patients, parents, doctors, and scientists)

www.notube.com (NoTube) To write to someone at NoTube, use this email: support@notube.com

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