Heart to Heart with Anna

Brother of an HLHS Warrior

January 22, 2018 Joey Jaworski Season 11 Episode 4
Heart to Heart with Anna
Brother of an HLHS Warrior
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Show Notes Transcript
In today's episode, big brother Joey Jaworski, talks about what it was like growing up with a brother with hypoplastic left heart syndrome or HLHS. He shares some of his earliest memories with Anna (who also happens to be his mother), talks about ways he believes he helped his brother and ways that he believes parents can help their heart warriors and heart-healhy children. He discusses ways he stays close to his brother, the big change he made just recently because of his family and why he feels it's so important to be near his family.Joey Jaworski is 3 years older than his brother Alex who was born with HLHS. Both Joey and Alex are now in their 20s. Joey talks about what it was like for him to try to help his family when his little brother had 2 open-heart surgeries within the first year of his life and then another one when Alex was 17 and Joey was 20 years old.

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spk_1:   0:00
Theo

spk_0:   0:05
Theo The 11th season of heart to heart with Anna. Our theme this season is heart or your siblings and we have a great show for you today. Today show is brother of an H L H s warrior and our guest is Joey Gorski. Joey Dworsky is the older brother to Alex Gorsky, who was born with hypoplastic left heart syndrome, or HL hs. Joey and Alex are three years apart in age. They spent a tremendous amount of time together since they were home schooled. Joey went to public high school when he was 16 but until that time he spent every day with his brother in the classroom and out. Joey is now 26 years old and he just recently moved back to Texas for most of their adulthood. Joey and Alex have lived in different states until December 2017. So welcome back to heart to heart with Anna Joey. My longtime listeners may remember you from season one of heart to heart with Anna.

spk_4:   0:58
Thank you for having me today. It's definitely good to be back.

spk_0:   1:02
Well, it's been a long time, but I really enjoyed having you on the show. My first season on the air, and we

spk_3:   1:09
talked a little bit

spk_0:   1:10
about this then. But there may be some list of Nurse who are listening now who didn't hear that first episode. So can you tell us about what you remember about Alex as a baby

spk_4:   1:21
as a baby? Mostly I was really, Really. It was just three years old, a little every Alex came into the world, and pretty immediately he was hospitalized. He was home for very little of that time before he went into the hospital Because of the severity of his congenital heart defects. You needed two surgeries. Would've been three if they hadn't combined the last two. Mostly what I remember is Alex going through that. I spent a lot of time trying to make

spk_5:   1:53
everyone feel better when I could, you know, trying to make my mom smile on my dad's smile because I know it was really hard for them and just making sure that you guys didn't have to worry about me, you know, I was very, very un gonna happen,

spk_0:   2:06
right? And so for those people who haven't picked up on it, you have the same eyes, same as me and you happen to be my son?

spk_3:   2:13
You saw the bomb. You're talking about that You

spk_0:   2:16
were trying to make you feel better. And Joey, I just loved how when you were little, even as a three year old, you were able to use your sense of humor to try and handle difficult situations. And I loved that about you. I think that's definitely one of your strengths.

spk_5:   2:34
Humor is definitely good for dark situations, which is what gets us through the night. As I've been told,

spk_0:   2:40
aside from knowing that Alex was in the hospital, do you remember visiting him when he was in the hospital?

spk_5:   2:48
That much is pretty much blacked out. Like I said, I was very young. I don't have a lot of memories at that time. I do remember seeing Alex and he was a little baby. I remember knowing that he was different and that he needed a lot of help from you guys and that you guys were doing everything you could for that. But as for actually being in the hospital, I remember waiting rooms,

spk_0:   3:11
your Aunt Susan and it. Karen brought you up to the hospital after he had his first surgery and I had asked them not to, because he was still on oxygen and he wasn't looking too good. And I didn't want you to be afraid. But they did it anyway.

spk_3:   3:28
You know, your

spk_0:   3:29
aunt's, we're going to do what they wanted to do. And so they called to let me know that they were there. And I remember walking outside of Alex's room and there was this huge white hallway and I remember you coming off of the elevator and me just falling to my knees and you running up to May because we hadn't seen each other for several days and it was kind of like a hallmark moment. So I wondered if you had remembered that. But I'm glad to know that seeing your brother on oxygen and all that wasn't too traumatizing for you if you don't even know it. But you were You were so wonderful with him and you were so gentle and sweet with him.

spk_4:   4:10
I don't think it was traumatic because I was very

spk_5:   4:14
young. I adapted to it well, because I was so young, you know, I just took it in stride, and I think it helped me

spk_4:   4:21
a lot later on, when Alex had to go back for surgery. You know, I think that the normality of it, because

spk_2:   4:27
it was just what I

spk_4:   4:28
was used to when I was younger, kind of eased me through some of that. The weirdness that you guys had, the experience of being so extreme,

spk_0:   4:38
all right. One of my other guests this season said this was our normal. And so I guess that's the way it is for you to. That's just what you knew as the oldest brother in your family. Did you feel that you had to help take care of Alex, given all of the doctor's appointments that he did have in the fact that he was younger than you and you had to go to those doctors appointments with him?

spk_4:   5:00
Yeah, definitely. He's my little brother. Of course I take care of them. I'll always take care of Alex.

spk_0:   5:06
Do you remember going to the appointments and making him laugh when he would be nervous?

spk_4:   5:12
I do remember trying very hard to make him laugh, even though sometimes it stocks. I do know that

spk_2:   5:19
I remember one time he was sick and I don't

spk_4:   5:22
remember whether it was related to his heart defect or whether it was just normal sake or what it was. We were a little bit older at that time. We may have been living in Florida. Maybe I was seven or

spk_2:   5:34
eight and I remember Alex being in the hospital and

spk_4:   5:37
he was nauseous. Is vomiting. So they gave him one of the little hospital vomit buckets, had units of measurement on the

spk_5:   5:46
side. And I remember Alex peaked a lot and he was feeling really horrible.

spk_2:   5:52
And he looked up at me and I was like, Awesome deed filled it almost all the

spk_5:   5:56
way up. So, like 800 no leaders I ever had not thinking

spk_3:   6:02
that that was ready.

spk_0:   6:06
Had to have his teeth remain. T He ended up having an abscessed tooth when he had fallen on the train as we were going to Florida. Took two years for that tooth, which had been fine. Was a little baby to We were just hoping it would fall out and it wouldn't fall out and said we noticed that it had turned black, and the dentist said, I'm so sorry. We're gonna have to do aural surgery on him, and yet he had a reaction to the anesthesia and he did vomit all over the place, including all over me, before we got that dictator that

spk_3:   6:40
you say

spk_0:   6:41
possibly Oh, my gosh.

spk_3:   6:45
But see, that's what I

spk_0:   6:46
need. You are always so good at just going with the flow and trying to make him life even when he did not want to laugh. And that was one thing. I don't think he was wanting to laugh with you

spk_5:   6:57
about that time, but sometimes he'd left.

spk_3:   7:01
You know what? A lot of

spk_0:   7:02
times he did laugh. A lot of times you were just what he needed to defuse the frightening experience that he was having. Because to him, I'm sure some of that was traumatic. But you ended up making it something that he could live with. And it's interesting because when you talk to him about things now, there's a lot of things just like you said. You blacked out some of those things. He blacked out a lot of those things, and I think if he hadn't had you there defusing it with humor, it might have been traumatic. It might have been something that he remembered with fear. Did you play with Alex like you did with your other friends. Did you ever worry about hurting him because of his car?

spk_5:   7:41
Not at all. No. I treated Alex just treated anybody else rougher, of course, because he's my younger brother. But now there is no reason. Alex. No, I didn't need to treat him differently.

spk_2:   7:55
He didn't want to be

spk_5:   7:56
treated differently. He would have been upset that I treated him differently. So, no, I just treated him like any older brother would. You know, we played together. We fought together. We did everything together,

spk_0:   8:08
even in karate. Even when you guys were taking taekwondo, you didn't ever take it easy on him a little bit.

spk_5:   8:14
I would make sure I didn't kick him in the chest. I would do that true share, but no. When we were sparring and everything, we were learning how to fight and how to defend ourselves. He's just a kid at the time, So of course I wasn't trying to murder and, you know, trying to beat him up, but, um, but I'd attack and, you know, I try and teach him how to defend himself, and he'd come back at me, But I would always make sure that I didn't kick him hard in the chest or punching her in the chest, because sometimes that would

spk_1:   8:39
hurt. Yeah, yeah, well,

spk_0:   8:42
I think that you did a good job of preparing him for the real world.

spk_6:   8:46
The most common theme here is why

spk_3:   8:50
she always needed a lot of attention. She had strokes.

spk_6:   8:54
Even though it's a natural inclination to withdraw from the CHD community, I think being a part of it, help me be part of the solution. Heart to heart With Michael Please join us every Thursday at noon. Eastern. I'm Michael even on I'll be your host is we talked with people from around the world who have experienced those most difficult moments.

spk_1:   9:18
You are listening to heart to heart with Anna. If you have a question or comment that you would like to address the show, please send an email to Anna Dworsky at Anna at heart to heart with anna dot com. That's Anna at heart to heart with anna dot com Now back to heart to heart.

spk_0:   9:36
Before the break, we were talking with you, Joey, about your childhood and what it was like having a brother with have a positive start syndrome. But now I'd like us to focus on your adulthood. Can you tell me how it felt for you when you were 20 and Alex was 17 and he was back in the hospital having another open heart surgery?

spk_4:   9:59
Uh, I think as an adult, it was more difficult because I didn't want to see him go back into the hospital, didn't want to see him go under the knife. So I was frustrated. I felt like it was out of my control, but I was spending more time with Alex than have been Think I was in Austin at the time. I remember going out with him in us

spk_2:   10:20
talking about it, and I was asked him how he felt about it if he was scared or not. And he's only No. Hey, he said, Of course I'm a little bit worried about

spk_4:   10:31
it. It was like, I know I have good people who are working on me. So this time around it was Alex. It made me feel better because I was really worried for him. But I don't want anything bad to happen to him after he accomplished so much like you call him being been a warrior through so much. Ma, it's so hard to keep his life. I didn't want anything to take that from him. And of course, he came out of it. Fine. You know, with flying colors I shouldn't have worried, but hard not to.

spk_0:   10:59
Yeah, I hear you. E think it is hard not to worry. We worked really, really hard, though, for himto have continuity of care. And I felt really lucky that he had the same surgeon. He had the same anesthesiologist, some of the nurses that took care of him when he was 17 where the same nurses who took care of him when he was a baby. And so it kind of felt like everybody who was there. I loved him like we did, and they all wanted to see him do well.

spk_4:   11:27
Yeah, and that that definitely put my mind at peace. More tales?

spk_0:   11:32
Yeah, I think it's interesting how it was a role reversal, and this time he was able to make you feel better. I think that's really need.

spk_4:   11:39
Yeah, it's good. It's part of the cycle.

spk_0:   11:44
Exactly. Exactly. So he had that surgery, and then it feels like Before I knew it, he was leaving for New York. How

spk_3:   11:53
did you

spk_0:   11:53
feel about him going all the way to New York to go to college?

spk_4:   11:57
I was proud of him. I was very proud of him for taking that step.

spk_2:   12:01
So throw himself into something completely unknown

spk_4:   12:04
and to do well, which he did. He did do well while he was there. He explored. He learned

spk_2:   12:10
he made friends.

spk_4:   12:12
What college is supposed to be about

spk_0:   12:15
or you nervous with him being so far away from home?

spk_2:   12:19
No, not really. I knew if anything

spk_4:   12:22
happened that he would either have good care there and we would come to him. Or if it wasn't a severe

spk_5:   12:28
that he would be able to make it home so that he could have the same people who took care of his

spk_2:   12:32
health around him again.

spk_0:   12:33
Yeah, Yeah, I think I worried enough for everybody, but I did find some good doctors there and gave them all of his records. And I knew that if something happened, he was close to some really good facilities. But it's interesting how you really didn't seem to be too worried about him, and he wasn't worried about himself at all.

spk_2:   12:57
Yeah, it was ready to get out there.

spk_0:   13:00
Yeah.

spk_2:   13:00
What's the point in fighting for that life, if you don't do anything with

spk_0:   13:04
Exactly. And that's why I couldn't hold him back. I had friends who said to me, How can you let him go all the way to New York? And I said, If he doesn't deserve the chance to fly to spread his wings and explore the world, who does?

spk_2:   13:18
Yeah, it's exactly how I feel.

spk_0:   13:21
Well, then you moved. It's not bad enough. Alex moved to New York. Then you move to Florida and you were there for two years. And one of those years Alex took a road trip to visit you. Why don't you tell us about that visit and some of the things that you did?

spk_2:   13:36
Well, some

spk_3:   13:36
of the

spk_0:   13:37
things that the mother should know

spk_4:   13:42
Alex really wanted to go to the beach,

spk_2:   13:44
which is my favorite thing to do in Florida. Had a list of beaches that I would cycle through. And so we ended up taking into one of the beaches that Ashley and I would take the dogs to, and he just had

spk_4:   13:56
a blast. You loved being out there. That was great. He's very good at relaxing, which is

spk_2:   14:03
pretty much what Florida's all about island life, as they call it.

spk_5:   14:07
We just had a good time, especially after being apart for lions really get to see him. It

spk_2:   14:13
made it become more

spk_4:   14:14
parent. The he had done what he wanted to dio throughout, fighting through his congenital heart defects. They're out fighting effects

spk_5:   14:22
of hyper plastic left heart syndrome.

spk_4:   14:24
He's normal. He's doing the things that

spk_2:   14:25
normal guy would his age.

spk_5:   14:27
I was a must. So he

spk_4:   14:29
fought through the Hypo Plastic Left Heart Syndrome and fought through all that he had against him. But he overcame and he became just a normal guy, which is what he wanted to dio normal in the sense of being average but normal in the sense of being able to do what he wants.

spk_5:   14:46
He wanted to come travel and take a road trip to see

spk_4:   14:49
his brother. And he did well, we had a good time and that was it. You know. I told him I was planning on moving back to Texas and said that would be nice. Eventually I came,

spk_0:   15:02
Yeah, so one of The things that I was really proud of him with is that he has not given up his dream to be a writer and one of the reasons he wanted to take the road trip on the bus, which I'll be honest with you that had me a little nervous, but went okay. But one of the reasons he wanted to take the best Waas. First of all, he wanted that experience. He wanted that experience in case he wanted to write that into one of his books, but also he knew that it would give him hours and hours and hours of time where he had no responsibility or as if he had driven. You know, he would have been free to do whatever he wanted to. So he told me that he was actually planning on writing as he went to Florida and as he came back, what did you think of that?

spk_2:   15:47
I think it's great pursuing his passion, he's always been very good about doing at every single day. He tries to write, which is excellent, and he's produced a lot of material through doing stand. But I have one of those books sitting right here I can see her right now.

spk_5:   16:02
Actually, my bookshelf that he roads a fantastical story about ah, the gods and the demons and in other worlds and cool stuff like that. So I mean, he he does. It makes it happen. Um, whatever excuse it is that

spk_4:   16:20
he uses to go right, It's it's usually likes to make up excuses just to go be by himself and write just produce material, which is perfect. Us already. Is there supposed

spk_5:   16:31
to be? You know, they're supposed

spk_4:   16:33
to put it down on paper, and he does. He makes it happen a lot, which is cool. I find that hard to

spk_5:   16:39
do myself in time. So I admire that. Admire his Ah, was his tenacity

spk_0:   16:47
acid Mr. NASA date Exactly. It's surprising to me how opposite the two of you are. He really is an introvert. He really does feel more comfortable in a very small group situation. Or, like you said all by himself. Whereas you have always been such an extroverted seem to like to be right in the middle of a group of people. How do you think? Um, that affects him as a writer versus you? Because you just like your brother have really good writing skills, and you're very creative.

spk_4:   17:19
You mean, has the difference of your social

spk_2:   17:22
setting affects your writing skills?

spk_0:   17:23
Well, how does being an extrovert versus being an introvert like, do you think that's why it's hard for you to write? Because as an extrovert, you want to be around people you don't want to be sitting by yourself writing?

spk_2:   17:36
No, I

spk_5:   17:37
think I'm just lazier than Alex. Honestly, I think the

spk_2:   17:43
difference between the twos religious

spk_4:   17:44
experience that you can, whatever that may be. But Alex is more reflective.

spk_5:   17:51
I'm not. I do things more, especially without thinking about them. I think that's maybe a symptom of being an extrovert. I don't know. I don't really know very much about the sociology of it all, but I do know that him being an introvert gives him time to focus more other than yeah, Like you said, being surrounded by people one in the midst of other people's things of other

spk_1:   18:16
people's dreams. He's

spk_2:   18:18
living his own

spk_7:   18:28
tonight forever by the Baby Blue Sound collective. I think what I love so much about this CD is that some of the songs were inspired by the patient's many listeners will understand many of the different songs and what they've been inspired. Our new album will be available on iTunes amazon dot com Spotify. I love the fact that the proceeds from this CD are actually going to help those with heart defects. Join music home

spk_0:   18:56
tonight forever, Joey. First of all, I want to say how happy I am that you are back in Texas. And I also want to tell you that I love the fact that you brought two more people into my world. And of course I'm ecstatic that I now have a daughter. I consider her my daughter. Even though you two aren't married yet, I know it's gonna happen. And she is just amazing. And I love Nick, too. So I'm wondering,

spk_2:   19:23
I'm gonna marry Nick. Just

spk_0:   19:29
I'm glad to hear that. You

spk_4:   19:32
guys can still hang out. That's okay.

spk_3:   19:34
Okay. I'm sure you will be relieved, Thio. Okay,

spk_0:   19:40
Your dynamic has changed a little bit and you're not by yourself. You have this very special person in your life and you have Nick as well. How

spk_3:   19:49
do you

spk_0:   19:49
think having these other two people in your life is going to affect your relationship with Alex.

spk_4:   19:55
Oh, Alex likes both of them, so we all hang out together. Since I've been back,

spk_2:   19:59
he came over and spent all the time with us. One evening, we're tryingto get it together so that I could come to his game nights and stuff as well. That's the whole reason I moved

spk_5:   20:10
back to Texas is I want to be closer to

spk_4:   20:12
money thing. Emily, I missed my thing when you seems like a really long time away from all the people that I know and love us as much as I do. And Alex is definitely one of those people. So

spk_5:   20:23
we're trying to make more plans together trying to be together more because that's the whole point that I came here,

spk_0:   20:29
right? Right. Maybe not all of my listeners know. But the last two years have been really hard on our family because we lost your Uncle Jack two years ago, and then we lost Aunt Susan last year, and it feels like our family has been traumatized lately.

spk_2:   20:48
Our mortality is very riel, feels like right now, and there's no better way to celebrate that than by being with people that she love. That's the only way that you can get through all that. I think,

spk_0:   21:01
Yeah, I agree. I think that when you have something traumatic like that happen in your life, it really makes you focus on what is the most important thing. And family has always been important to us. But when you lose somebody you love, it becomes even more important to spend that time together. And I think one of the things I've noticed as I became an adult and especially as I became a mom is that the time really gets away from you unless you make a point of putting those states on a calendar and just for the benefit of our listeners. When Joey is talking about game night, we're not talking football, which is what most people in Texas mean when they say game night. Alexander actually loves board games and card games of all kinds, and so he once a week has a bunch of friends come over to the house and they play one of a variety of games. I

spk_3:   21:55
thought it

spk_0:   21:55
was really cool how he even supported a startup company that had a Kickstarter for a game and have you played that game with him?

spk_2:   22:03
Oh yeah, did play with it. It was frustrating.

spk_3:   22:09
I haven't played

spk_0:   22:10
the one that he did with the Kickstarter, but I have played some of the other new games that he's got in, like exploding kittens. That was a thing without like, Yeah, you never know what what he's going to come up with next

spk_2:   22:25
is big board game lover. I'll make him a Houston Texans fans Sunday. The promise.

spk_0:   22:30
I don't know how a football just doesn't seem to be anything that he gets too excited about. It's funny because

spk_3:   22:38
you two are so opposite

spk_0:   22:39
in that way, you know you. But I think part of it was that you grew up loving all kinds of sports. You grew up loving swimming and tennis and golf and just about anything that you tried. And with Alex, it seemed like he loved the taekwondo. I think you're really, really got into that, but aside from that, there hasn't been a sport that's really captured him. Do you think?

spk_2:   23:03
No, not so much. He's a writer. That's what he's always wanted,

spk_0:   23:07
right? Yeah. What advice do you have for other siblings? Whose brother or sister has a heart defect, especially a serious heart defect that might require multiple open heart surgeries.

spk_2:   23:18
The only advice I could really give someone like that is to be there for your family. That's that's all you can. D'oh! And whatever support you give them is gonna come in many shapes and forms, and it's up to you just to figure out what that is and what they need from you. To be that missing cog, whether it's not there,

spk_0:   23:40
can you give some examples of ways that you feel like you've been there for Alex?

spk_2:   23:44
What we talked earlier about making things easier for me just talking to him. I'm just trying to make him feel better about the situation. It's hard to say what you do to

spk_5:   23:54
support them when it's a

spk_4:   23:55
health condition like this. I was too young to really help and through changing his bandages. They're

spk_5:   24:02
doing anything like that when he was younger. But I

spk_2:   24:04
do know winning at a surgery when he was 17. The only way I really helped him coming

spk_5:   24:09
to visit him. It was all I could do. I could visit him and and make him feel better just emotional support is very important. I think

spk_0:   24:17
you may not realize, but as soon as he was feeling well enough, really, it was like the second or third day after his surgery, when the first things he asked me for was his phone because he wanted to text with you.

spk_5:   24:31
I bought him some pokey want game so you could play it in the hospital.

spk_4:   24:34
He was like, I'm gonna be in the hospital for every

spk_2:   24:36
bottom, some token, one game. And I

spk_5:   24:38
remember bringing that sound being like, hopefully this makes you know aboard.

spk_0:   24:42
Yep. I remember that. I remember that he had that little game boy that he was playing on and we watched a ton of movies. And that's when I became addicted to plants versus zombies. Really? Yes. Alex got me addicted to plants versus zombies. We beat every sure it was fun. I know that when you came to visit him on Thanksgiving Day admits so much to him. The last place he wanted to be on Thanksgiving Day was in the hospital and you came to be there with him. Do you remember that day?

spk_2:   25:16
I do.

spk_0:   25:17
Can you share a little bit of that with us.

spk_2:   25:19
Remember being a little bit nervous to see him because I didn't know exactly what it was gonna look like You are, How much he was hurting. I definitely didn't want to bother him, but he was really happy to see me when I came, which was nice. It was my nose. Good that I came, you know? Just remember talking to him

spk_5:   25:39
about it. Ask him how he was feeling.

spk_4:   25:41
He's still in a lot of pain from after the surgery. Getting cut into is not fun. It seems

spk_2:   25:47
like so he was dealing with a lot of that. And I just remember talking to him about what he was gonna do next, how he likes the game that he was playing. But he wasn't right about no talks a lot about how bad he was. Uh,

spk_0:   26:04
the funny thing was, he wasn't feeling bad from being cut into. He was feeling bad from having no stupid tubes because he had the pleural effusions and he had two tubes in for 26 days. It was just such a long time. And those he told me were much more painful than the scar on his chest because they kept pulling and he just couldn't wait to get those tubes out. I know that just seemed to last forever for him. And when he finally got those tubes out, he finally felt like, OK, now I can take a deep breath. Yeah, Joey, what advice do you have for parents who have more than one child where one child has a hard to fit and the other child, it's heart healthy.

spk_2:   26:50
But I would say is that you need to give your Children the time that they need whatever that may be. I myself didn't need a whole lot of time because I was very worried about my little brother and I wanted my parents to make sure that he was okay. You need to stay together as parents. You gotta form a union, and you got to make sure that you get your kids through this because I know that these difficult experiences, especially having a kid like that hospital container people apart. And I don't think that that is good. I think that a lot more happiness comes from staying together, banding together with your family, whether your other child is hard, healthy or you've got two kids who are in the hospital with in general are defects. Everyone bands together, and it makes it better. That brings more happiness because there will be a time when you're not in the hospital, things will get better and you want

spk_5:   27:46
to be the people who stuck together when that time comes.

spk_0:   27:50
When you were three years old, you were staying with Aunt Susan while I was by Alex's bedside in the hospital three hours away from home, and it's Susan called me at the hospital because this was in the days before there were cell phones. Joey is 26 Alex's 23 said, We didn't have cell phones back then, and I took the phone calls near the nurse's station so I could still keep an eye on Alex. And I was really afraid to talk to you, because at that point the doctors had told us Alex probably wouldn't survive the surgery, and I felt like I was walking a tightrope between keeping together and falling apart. And I remember talking to you and you said

spk_3:   28:30
Hi mommy,

spk_0:   28:30
and you were so cheerful, unhappy, and I said, Hi, baby, how are you doing and you said,

spk_3:   28:35
Oh, I'll

spk_0:   28:35
find Aunt Karen came and we went out to dinner. We went and played on a swing set and then you stopped and you said, How's my baby brother? It was one of the hardest questions I ever had to answer because I didn't know what was gonna happen. And so I said to you that he had lots of doctors and nurses taking good care of him and that we were all doing the best that we could. And you got really quiet. And you said, Mommy, you don't worry about me. You just take care of my baby brother and it still makes me cry is that's what I was afraid of. I was afraid I wouldn't be able to talk to you without crime. But the fact that you were three years old and you were so perceptive that you knew that it's not that I didn't love you, You know, the fact that she worked with me wasn't because I didn't love you, But it was because I had to take care of your brother.

spk_5:   29:29
You have to probably worried us

spk_0:   29:31
Well, you are my priority to, but you'll never know how much it meant to May, To know that you were okay. That in Susan at Karen and Uncle Andre, Rachel, Megan and it, Chrissy that all of them were taking good care of you and that you knew that I needed to be there for Alex.

spk_5:   29:50
I was very fortunate to have a family that was all there

spk_2:   29:54
for me and was there for you

spk_5:   29:55
guys was very fortunate.

spk_0:   29:57
Yeah. Thank you so much for coming on the show today, Joey.

spk_5:   30:02
Yeah, Thank you very much for giving me back. It's always a pleasure to be on your show.

spk_0:   30:07
That concludes this episode of heart to Heart with Anna. Thanks for listening today, my friends, please come back next week on Tuesday at noon Eastern time. And until then, please check out our new website and that's www dot hug dash podcast network dot com. Have a great day. And remember, my friends, you are not alone.

spk_1:   30:25
Thank you again for joining us this week. Way Hope you have been inspired on Empowered to become an advocate for the congenital heart defect community. Heart to heart with Anna, with your hose down, Dworsky can be heard every Tuesday at 12 noon Eastern time.

spk_3:   30:54
Heart to heart with AMA is a presentation of hearts Unite the Globe and is part of the hug Podcast Network Hearts Unite The Globe is a nonprofit organization devoted to providing resource is to the congenital heart defect community to uplift and power and enrich the lives of our community members. If you would like access to free resource, is pretending to the CHD community please visit our website at www congenital heart defects dot com for information about CHD, the hospitals that treat Children with CHD summer camps for CHD survivors and much, much more.

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