Heart to Heart with Anna
Revitalize your spirit and connect with the vibrant congenital heart defect (CHD) community through 'Heart to Heart with Anna,' the pioneering podcast that has been inspiring and informing listeners since 11-12-13. Join us as we dive deep into the personal journeys, triumphs, and challenges of Survivors, their loved ones, esteemed medical professionals, and other remarkable individuals within the CHD community.
With unwavering dedication, our heartfelt conversations bring to light the stories that need to be heard. Gain invaluable insights, expert advice, and a sense of empowerment as we explore the multifaceted world of CHD. Our mission is to uplift, educate, and enrich the lives of every member of this incredible community.
Embark on a transformative listening experience where compassion and understanding thrive. Discover the resilience and unwavering spirit that resides within each person touched by CHD. Together, let's build a community where support and knowledge flourish, bringing hope to the forefront.
Tune in to 'Heart to Heart with Anna' and embark on a remarkable journey that will leave you inspired, enlightened, and connected to the beating heart of the CHD community.
Heart to Heart with Anna
Sharing Families Stories; the Value of our Medical Histories
What happens when one daughter, in a set of twins, is diagnosed with a congenital heart defect and the other twin is heart-healthy? How can a family handle having one child in the hospital, separated from her twin? What should families tell their children about their medical history? What is the value of sharing family stories?
Lisa and Michael Olivares are parents to identical twins Mabel and Maggie, born in 2013. The pregnancy was complicated by Twin-to-Twin transfusion syndrome and Mabel was smaller than Maggie. Two days after they were born, a nurse picked up a heart murmur in Mabel. She was diagnosed with coarctation of the aorta and had surgery at 9 days of age.
Just after her first birthday Mabel was diagnosed with subaortic membrane, and had her second surgery shortly before 2 years of age, followed by a third emergency surgery at 4 years of age due to heart and lung symptoms. At the age of 4, she developed heart and kidney failure but has thankfully responded well to medical therapy. Mabel also attended physical therapy for musculoskeletal hypermobility but she has graduated from physical therapy!
Mabel loves playing dress-up and being outside in the fresh air with her twin sister Maggie. She was nominated for Make-A-Wish and the family spent a week at Give Kids the World Village in Florida where Mabel met her favorite princess - Snow White - at Disney World.
Today the Olivares share with Anna what their medical journey with Mabel was like, some advice for other parents going through the same kind of medical journey, and why they feel sharing family medical stories is so important.
Links to organizations mentioned in this episode:
Songs of Love: The Medicine of Music: https://www.songsoflove.org/
Make-A-Wish Foundation: https://wish.org/
Give Kids the World Village: https://www.gktw.org/
Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817
Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:
Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2
MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw
Website: https://www.hug-podcastnetwork.com/
Thanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!
Anna's Buzzsprout Affiliate Link
Baby Blue Sound Collective
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