AcroTales
Episodes
28 episodes
Episode 27 - Paula
In Episode 27 of AcroTales, we meet Paula — born and bred in Durham, UK, now calling Toronto, Canada home.Paula's story is one of remarkable coincidences and profound life challenges, met with an inspiring stoicism and quie...
Episode 26 - Matt
In this episode of AcroTales, we meet Matt from New York in the USA.Diagnosed with Acromegaly in 2022, Matt takes us beyond the physical symptoms and into territory many patients face but few openly discuss: the devastating impact...
Episode 25 - Sam
In Episode 25 of AcroTales we meet Sam, who is from Lincolnshire in the UK. Sam's story is one that shows how quickly pituitary conditions can develop and the sharp impact they have on our health. Within two years Sam has di...
AcroTales Special: Acromegaly UK Patient Engagement Day 2025
In September 2025, around 30 UK patients (and their families) met in London for a UK Patient Engagement Day.I set up the first UK Acromegaly Meetup in 2017 and we did them again in 2018 and 2019. Then COVID hit and we hadn't done one sin...
Episode 24 - Cas
In Episode 24 of AcroTales we meet Cas from Nevada in the USA. Cas's story really demonstrates the challenges faced when undergoing the 'diagnostic odyssey' in a search for answers. After experiencing a range of symptoms, C...
Episode 23 - Jeremie
In Episode 23 of AcroTales we meet Jeremie from the Philippines. Jeremie's story is one of challenges, resilience and hope. Diagnosed with a tumour at just 19 years old - and right in the middle of Covid - he explains his jo...
Episode 22 - Chrissy
In this episode of AcroTales we hear from Chrissy who lives in the Cotswolds in the UK. Chrissy is 44 and was diagnosed in 2013.Everyone's AcroTales is unique and comes with surprises, but there's no doubt that Chrissy's tale is one of ...
Episode 21 - Natalie
In Episode 21 of AcroTales we meet Natalie who is based in Buckinghamshire in the UK. Natalie's story is rather different in that she has elevate IGF-1, a micro adenoma yet her Oral Glucose Tolerance Test (OGTT) is in range ...
Episode 20 - Thomas
In Episode 20 of AcroTales we speak to Thomas from Switzerland. Thomas was diagnosed only a few months go and recently had surgery, so this is clearly very new and raw for him. He talks about the symptoms, diagnosis, his girlfriends desi...
Episode 19 - Roz
In Episode 19 of AcroTales we speak to Roz from Essex in the UK. Roz was diagnosed in 2005 after a succession of symptoms that had been present since her teens. Roz's journey has not been easy and had her third r...
Episode 18 - Jill
In Episode 18 of AcroTales we speak to Jill from from Oklahoma in the USA. Jill was diagnosed with Acromegaly in 2005 and it was quite a struggle for her to get a diagnosis. Jill is shining example of turning a negative into a positive. ...
Episode 17 - Vanessa
In Episode 17 of AcroTales we speak to Vanessa from Rhode Island in the USA. Vanessa was diagnosed with Acromegaly at the very young age of 21 and totally by accident too after a visit to see an allergy specialist! Vanessa's story explor...
Episode 16 - Paul
In Episode 16 of AcroTales we speak to Paul from Melbourne in Australia. With a hefty dose of humour, Paul talks about the road to diagnosis, the challenges faced and how his first diagnosis wasn't the only hurdle. Thanks to...
Episode 15 - Caroline
In Episode 15 of AcroTales we speak to Caroline from Bedford in the UK. Caroline was diagnosed with Acromegaly at the extremely young age of 13 and her fascinating tale explores diagnosis, the impact on family and her formative years, ho...
Episode 14 - Phil
In Episode 14 of AcroTales we speak to Phil from Southampton in the UK. Phil was diagnosed on April 1st 2010 (no joke!) and tells the story of his long road to diagnosis, the impact it has had on his life but also how it has motivated hi...
Episode 13 - Spencer
In Episode 13 of AcroTales, we speak to Spencer in the UK. Spencer was diagnosed by a chance encounter, and talks about his experiences of diagnosis and how the condition impacted on his life.
Episode 12 - Natalia
In Episode 12 of AcroTales we speak to Natalia from Columbia. Natalia was only diagnosed in 2019 and so she paints a vivid yet insightful picture of her diagnosis, the impact it has had on her life plus how - just one year on - she is al...
Episode 11 - Dee
In Episode 11 of AcroTales we speak to Dee from Maryland, USA. With her background in nursing, Dee paints an honest yet insightful outlook on her Acromegaly, the journey she underwent to get there and the shocking discovery she made all ...
Episode 10 - Richard
In this episode of AcroTales, we hear from Richard in the UK. Richard was diagnosed in his mid-60s and talks about the diagnostic journey he underwent to reach his diagnosis and the impact it's had on his life, all told with great humour...
Episode 9 - Larry
In Episode 9 of AcroTales we speak to Larry from Nebraska. Larry paints an insightful picture of the difficulties faced when you're diagnosed with Acromegaly and - whilst life was tough - he was able to use his positivity and spirituality to ge...
Episode 8 - Bert
In Episode 8 of AcroTales we speak to Bert from Nebraska. Bert was diagnosed with Acromegaly in 2010 after a range of health complications led various specialists couldn't initially make the correct diagnosis. We discuss this impact this...
Episode 7 - Mike
In this episode of AcroTales we talk to Mike from London in the UK. Mike was diagnosed only a couple of years ago but has been on quite a journey since his diagnosis, and talks in depth about treatment, medication and radiotherapy. As we...
Episode 6 - Sheila
In Episode 6 of AcroTales we talk to Sheila from Trieste in Italy. Sheila is 51 and was diagnosed with Acromegaly in 2003 and is currently in remission. We discuss the complications leading up to diagnosis, how it impacted on her life an...
