Mind What Matters
Mind What Matters is a podcast about memory disease such as Alzheimer's and Dementia and how we can best care for the longterm health of our minds. Hosted by public speaker and advocate Elizabeth Humphreys.
Mind What Matters
What Frontotemporal Dementia Really Looks Like with Beth Jones
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This week on Mind What Matters, Elizabeth Humphreys and Nikki DeLoach sit down with caregiver, advocate, and podcast host Beth Jones for an honest conversation about frontotemporal dementia, isolation, and what happens when your parent slowly becomes someone you no longer recognize.
Beth shares the story of her mom’s early-onset FTD diagnosis at just 65 years old, including the subtle personality changes that first raised concern, the years spent searching for answers, and the overwhelming loneliness that followed after diagnosis.
Together, Liz, Nikki, and Beth talk about the reality many caregivers experience but rarely discuss openly: feeling dismissed before diagnosis, navigating a healthcare system that offers little guidance, and trying to hold onto yourself while watching someone you love slowly change.
They also explore the importance of community, practical planning, caregiver mental health, and why finding people who truly understand your experience can change everything.
This episode is deeply personal, validating, and full of the kind of honesty caregivers often need most.
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Mind What Matters is produced by the team at Palm Tree Pod Co.