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Hope Charities
Honest conversations about bleeding disorders, rare diseases, and chronic illnesses.
Hope Charities
Latest Episodes
More Than a Diagnosis: Finding Your Voice With von Willebrand Disease
For full Prescribing Information for VONVENDI, please visit: [https://takeda.info/3RMfhbp]. A bleeding disorder is part of someone’s story — but it is not the whole story. In this episode of the Hope Podcast, Jonathan James talks w...
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More Than Surviving: Patrick James Lynch on Hemophilia, Healing, and Hope
Growing up with severe hemophilia A, Patrick James Lynch was told a different story about what his future might look like. Now, reaching middle age, he reflects on what it means to live in a season of life many in his generation weren’t sure th...
More Than the Bleeds: Debbie De La Riva on the Emotional Reality of Hemophilia
In this powerful episode, Jonathan James sits down with licensed professional counselor, longtime patient advocate, and Mental Health Matters Too founder Debbie De La Riva to pull back the curtain on the hidden mental health realities of living...
Denied While Insured? Kim Czubaruk Explains Alternative Funding Programs
You pay for insurance—so why are patients still being denied medication?In this important episode, Jonathan James sits down with healthcare policy advocate Kim Czubaruk to unpack Alternative Funding Programs (AFPs),...
75% of the World Lacks Treatment: The Global Hemophilia Crisis | Save One Life
A child with hemophilia should not have to live in constant pain because of where they were born—but for much of the world, that is still reality.In this episode, we sit down with Cindy Komar of Save One Life on World Hemophilia Day to ...
