Hope Charities
Honest conversations about bleeding disorders, rare diseases, and chronic illnesses.
Podcasting since 2022 • 24 episodes
Hope Charities
Latest Episodes
Recent reporting on Adverse Events: A Thoughtful Conversation on Safety, Transparency, & Next Steps
Jonathan James sits down with Dr. Akshat Jain to address the community’s questions following news of a serious adverse event in an extended trial of a new therapy, Marstacimab. They discuss Pfizer’s transparency, the careful investigative proce...
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42:36
She Refused to Stay Silent: Connie Montgomery on Diagnosis After Decades of Dismissal
A candid conversation with Connie Montgomery charts a lifetime of being dismissed, the car accident that unlocked a Factor VII diagnosis, and the fight to secure prophylaxis. We spotlight bias, culture, and the power of narrative medicine to ch...
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58:19
More Than a Carrier: How Unexplained Injuries and Surgery Led Me to a Diagnosis - Amanda Gradzewicz
We trace Amanda’s journey from helping her dad infuse to raising two kids while navigating her own diagnosis as an affected woman. The conversation moves from missed signs and medical pushback to advocacy, testing for girls, community support, ...
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58:04
Women with Bleeding Disorders: Resilience, Hope, and Advocacy with Dr. Danielle Nance
Ever wondered how a bruised toddler grows up to be a hematologist changing the game for women with bleeding disorders? Dr. Danielle Nance takes us on that journey full of aha moments, hard truths, and some laugh-through-the-tears stories.
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2:19:23
Healthcare in Crisis: The Truth About PBMs with Dr. Madelaine Feldman
Dr. Mattie Feldman, rheumatologist and healthcare policy expert, exposes how Pharmacy Benefit Managers have evolved from administrative entities into powerful forces that control medication access, often prioritizing profits over patients.<...
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1:09:04