Dr. Mattie Feldman, rheumatologist and healthcare policy expert, exposes how Pharmacy Benefit Managers have evolved from administrative entities into powerful forces that control medication access, often prioritizing profits over patients.<...

This episode focuses on the often-overlooked experiences of women with bleeding disorders. Dr. Akshat Jain discusses the importance of advocacy, the need for gender-sensitive healthcare approaches, and how quality of life relates to treatment a...

In this podcast episode interview,  our host Jonathan James discusses the challenges and critical changes needed to improve the diagnosis and access to treatment for women with bleeding disorders with Dr. Tamuella Singleton. I...

What if the key to saving countless women's lives is understanding their monthly cycles? Join us for an eye-opening conversation on the Hope Podcast with Dr. Bivin Von Almen, an esteemed obstetrician with over 30 years of experience. From his j...

Ivan Giron helped advocate for his daughter Naomi to gain a diagnosis and ongoing treatment after learning more about women having a bleeding disorder. After Ivan realized that his daughter was having abnormal bleeding during her minstrel cycle...

Claudio Sandoval will share insights on “The Knee: The "Target" Joint” in his session on Sept 26th at 1:00 PM (CST).Join us for our upcoming Joint Health Conference Online on Sept 26th & 27th, sponsored by Octaph...

Kevin Griggs will share insights on “Hemarthrosis: Blood Where it Shouldn't Be” in his session on Sept 26th at 10:15 AM (CST).Join us for our upcoming Joint Health Conference Online on Sept 26th & 27th, sponsored...

Fernando Reyes will share insights on “Improve Your Mental & Physical Health: Thought, Exercise, and Diet” in his session on Sept 27th at 10:15 AM (CST).Join us for our upcoming Joint Health Conference Online on ...

In this podcast Jonathan James discusses upcoming event plans and patient resources with Joe Ferguson, Tesia Nagorka, and Suzi Cannon. Registration for upcoming events can be found on our website at www.hope-charities.org. Hope ...

Rodney Dalrymple shares his journey of living with Hemophilia and overcoming the challenges of treatment with an inhibitor. In this podcast episode we discuss the importance of overcoming the mental challenges associated with growing up with a ...

In this episode, Jonathan James interviews Maxwell Hunter who is a quality assurance expert in plasma collection. He shares about current therapies available, technology changes, and product safety. Hope Charities is a nat...

In this episode, we talk about the history of the Hemophilia community and the many transitions of treatment and therapy through the last 30 years in the United States. Trish Underland's background as a nurse care coordinator at the Hemophilia ...

When most people are diagnosed with a rare disease like Hemophilia it is common to experience fear of the unknown, but when that diagnosis happens overseas in a foreign country with doctors and nurses who don't speak your language the uncertain...

Your personal information is protected by The Health Insurance Portability and Accountability Act of 1996 (HIPAA). In this podcast, our host Jonathan James does a deep dive with Greg Webb, HIPAA compliance officer and in-house coun...

“Financial Assistance Legislative Challenges”In Episode 6 Jonathan James and James Romano have an important discussion about many of the legislative challenges facing people who need financial assistance while living with a rare o...

Living with Hemophilia is no easy road and the unsung heroes of anyone living with a rare or chronic condition are the family that surrounds them. Hannah James joins her Dad Jonathan James in an unplugged interview to talk about growing up as a...

There is no better way to connect with family or friends than to spend time enjoying food with one another. In this episode, Jonathan James and Brad Creel talk with Food Network host and world-renowned author and food expert Simon Majumdar to d...

In Episode 3 Jonathan James and Lori Bienvenu, LPC sit down with suicide survivor Emma Benoit to have an important conversation about #MentalHealth and suicide prevention. Emma shares her story of surviving a suicide attempt and her undiagnosed...

In episode two of the Hope Charities Podcast, Jonathan and Stephen sit down and talk about many of the aspects of living with a bleeding disorder from the perspective of the patient. In addition they talk about what that looks like on preventat...

In episode one of the Hope Charities podcast, Jonathan James (CEO) invites Lesley Lamarie to discuss some aspects of prophylaxis and life for the hemophilia and bleeding disorder community.  Make sure to tune in and don't forget to...