“Financial Assistance Legislative Challenges for people living with hemophilia and other rare disease

“Financial Assistance Legislative Challenges”

In Episode 6 Jonathan James and James Romano have an important discussion about many of the legislative challenges facing people who need financial assistance while living with a rare or chronic disease like Hemophilia. James talks about the copayment accumulator, third party payments and many other issues that directly impact the financial assistance people are able to receive when living with a rare disease. James is the executive director for United for Charitable Assistance Coalition and the Hope Charities legislative consultant. You can learn more about the important work UCA is doing at www.unitedforcharitableassistance.org.

Hope Charities is a national nonprofit focused on helping people living with rare and chronic illnesses thrive. Our programs specialize in helping people with genetic bleeding disorders and #hemophilia navigate the challenges of invisible disease by providing emotional, educational, and tangible support. To learn more about our programs visit our website www.hope-charities.org. 

Audio versions of this podcast are available on Spotify, Apple, and anywhere you listen to podcasts. Subscribe to our podcast to listen to more inspiring interviews like this today. 

Spotify:

https://open.spotify.com/show/7mHb8FnlHmOz0PBcv6kQ8p?si=hlBA_VPsTmaJTbOmkQyvNg

Apple:

https://podcasts.apple.com/us/podcast/hope-charities/id1613823273

iHeart:

https://www.iheart.com/podcast/269-hope-charities-93979933/

#chronicillness

#bleedingdisorders 

#youarenotalone

#hemophilia 

#financialassistance 

#suicide

#advocate

#healthcare