Making the Most of Now
The podcast brings together the Multifocal Motor Neuropathy community to discuss this rare neurological condition and related ones. We talk to medical experts, patients and their supporters in the hope of informing and inspiring.
Podcasting since 2023 • 20 episodes
Making the Most of Now
Latest Episodes
All About MMN Awareness Month 2025
With February approaching I sat down to chat to Maddy Miller, Kaitlyn Ide and Meg Mains of the GBS|CIDP Foundation International about Multifocal Motor Neuropathy Awareness Month. What ensued was a great conversation about the many ...
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Season 2
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Episode 10
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47:31
Dr Gareth Parry - Getting a Grip - Understanding better how MMN affects you
Dr Gareth Parry joins me to discuss the small study we are doing to try to understand how my MMN is affected by my preparation for the Tour de MMN 2025. In our conversation Gareth provides an overview of MMN symptoms, diagnosis and...
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Season 2
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Episode 9
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57:20
Dr Jeff Allen - A deep dive into MMN
A true deep dive into MMN with Dr Jeff Allen, one of the worlds leading experts in the field of inflammatory neuropathies and head of the GBS|CIDP Foundation International Global Medical Advisory Board. Jeff is lead author of a rec...
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Season 2
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Episode 8
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56:37
Edward Gent - Tackling a marathon when you have MMN - why it's a team sport
Edward Gent joins me to discuss his recent foray into marathon running as part of the Ride for MMN and MMN Awareness Month. Edward had never attempted anything like this before his diagnosis with MMN, so it was a real step into the...
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Season 2
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Episode 7
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1:21:38
Lynn Rogers - Research Scientist and Triathlete on life with CIDP
In this episode I chat with Lynn Rogers about her life with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). Lynn is a research scientist who in 2017 found herself experiencing pain and loss of movement that saw her being admitted to h...
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Season 2
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Episode 6
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2:18:22