Making the Most of Now
Making the Most of Now
Latest Episodes
Nicole Tait - The Nuts and Bolts of Rare Disease - IVIG and SCIG
Special episode exploring our experiences with the two different ways that immunoglobulin treatment is delivered. As patients with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) and Multifocal Motor Neuropathy, Nicole and I both rely ...
The Road to LA28 - Paralympics Series with Ben Watson - #1 - Introduction & the year so far
What does it take to get to the Paralympics? What does it take to win a medal? Those are the questions we hope to answer over the next couple of years in our Road to LA28 series with British Paralympian Ben Watson.In the firs...
Rob Long - Uplifting Athletes and the Rare Disease Community
Remarkable, inspirational, humbling are just a few of the words that can be used to describe Rob Longs journey from the verge of the NFL draft to his role as CEO of Uplifting Athletes via an 18 month battle with a rare form of brain cancer…...
Miles Washburn - Miles for GBS - "It's all about the patient"
“It’s all about the patient”In this episode, I talk to Miles Washburn about his GBS experience, the Miles for GBS challenge and about the motivation behind it.Early in 2025, Miles Washburn was struck down by Guillan Barre Syndrome...