Making the Most of Now
The podcast brings together the Multifocal Motor Neuropathy community to discuss this rare neurological condition and related ones. We talk to medical experts, patients and their supporters in the hope of informing and inspiring.
Podcasting since 2023 • 27 episodes
Making the Most of Now
Latest Episodes
Miles Washburn - Miles for GBS - "It's all about the patient"
“It’s all about the patient”In this episode, I talk to Miles Washburn about his GBS experience, the Miles for GBS challenge and about the motivation behind it.Early in 2025, Miles Washburn was struck down by Guillan Barre Syndrome...
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1:03:09
Dr Ludo van der Pol - MMN Innovation and Trials
What has enabled recent developments in understanding of the mechanisms that cause MMN?Why have these developments been important in the development of new possible treatments currently being trialled?What’s involved in clinical t...
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1:10:29
Claire Bergstrom Johnson - Neuroscientist, Entrepreneur and Change Maker
In the latest episode of our podcast, I chat to Claire Bergstrom Johnson. A research scientist at the University of Oxford, Claire Bergstrom Johnson is making meaningful discoveries that are transforming how patients with a rare, of...
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1:35:43
John Navarro - Finding your calling after diagnosis with Multifocal Motor Neuropathy (MMN)
John Navarro is remarkable in many ways. First affected by MMN about 8 years earlier, John was diagnosed with MMN in 2024. His journey to diagnosis was by no means easy. After first experiencing symptoms in his toes, the...
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59:32
Ben Watson - From Guillain Barre Syndrome to Paralympic Gold - An Incredible Journey
Ben Watson MBE is a full time Para athlete, double paralympic champion and Ambassador for Inflammatory Neuropathies UK. Diagnosed with Guillain Barre Syndrome aged 14. Almost overnight Ben went from being incredibly acti...
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1:02:10