Making the Most of Now
Making the Most of Now
Latest Episodes
The Road to LA28 - Paralympics Series with Ben Watson - #2 - Gearing up for the Worlds
As he prepares for the World Championships in Huntsville, Alabama, Ben and I sit down to catch up. We discuss how his riding is going, how he has prepared for the Worlds, his hopes for the races and a how he and his team mates relax as th...
The role of patient voice in informing government treatment funding decisions - The live case of funding a new CIDP treatment in Australia
Patient Voice matters!! This is always true, but especially when governments are considering whether to fund new treatments. With the Australian Government considering whether to fund a new CIDP treatment later this yea...
Pushing the Boundaries of MMN Research - Dr Nicolas Dubuisson
Conversation with Dr Nicolas Dubuisson (University of Oxford) about his cutting edge research into the cause of Multifocal Motor Neuropathy and his hopes to also conduct research that enables a biomarker to be found that helps better identify w...
Miles Washburn - Gearing up for Miles for GBS
In this episode I catch up with Mile Washburn who i first talked to earlier this year ahead of his epic "Miles for GBS" Challenge on 24 August. Miles was diagnosed with Guillain Barre Syndrome (GBS) in 2025 and after a short period ...
Nicole Tait - The Nuts and Bolts of Rare Disease - IVIG and SCIG
Special episode exploring our experiences with the two different ways that immunoglobulin treatment is delivered. As patients with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) and Multifocal Motor Neuropathy, Nicole and I both rely ...