
Making the Most of Now
The podcast brings together the Multifocal Motor Neuropathy community to discuss this rare neurological condition and related ones. We talk to medical experts, patients and their supporters in the hope of informing and inspiring.
Episodes
20 episodes
All About MMN Awareness Month 2025
With February approaching I sat down to chat to Maddy Miller, Kaitlyn Ide and Meg Mains of the GBS|CIDP Foundation International about Multifocal Motor Neuropathy Awareness Month. What ensued was a great conversation about the many ...
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Season 2
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Episode 10
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47:31

Dr Gareth Parry - Getting a Grip - Understanding better how MMN affects you
Dr Gareth Parry joins me to discuss the small study we are doing to try to understand how my MMN is affected by my preparation for the Tour de MMN 2025. In our conversation Gareth provides an overview of MMN symptoms, diagnosis and...
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Season 2
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Episode 9
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57:20

Dr Jeff Allen - A deep dive into MMN
A true deep dive into MMN with Dr Jeff Allen, one of the worlds leading experts in the field of inflammatory neuropathies and head of the GBS|CIDP Foundation International Global Medical Advisory Board. Jeff is lead author of a rec...
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Season 2
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Episode 8
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56:37

Edward Gent - Tackling a marathon when you have MMN - why it's a team sport
Edward Gent joins me to discuss his recent foray into marathon running as part of the Ride for MMN and MMN Awareness Month. Edward had never attempted anything like this before his diagnosis with MMN, so it was a real step into the...
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Season 2
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Episode 7
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1:21:38

Lynn Rogers - Research Scientist and Triathlete on life with CIDP
In this episode I chat with Lynn Rogers about her life with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). Lynn is a research scientist who in 2017 found herself experiencing pain and loss of movement that saw her being admitted to h...
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Season 2
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Episode 6
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2:18:22

Rich Collins - Bringing New Energy to GBS, CIDP and MMN in the UK
In this episode recorded at the start of GBS|CIDP Awareness Month I chat to Rich Collins CEO at GAIN Charity in the UK. GAIN stands for Guillain-Barré Syndrome & Associated Inflammatory Neuropathies. It is the only charity dedi...
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Season 2
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Episode 5
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1:16:58

Nancy Di Salvo - Connector Across Continents
In this episode of the podcast I chat to Nancy Di Salvo Director of International Affairs at the GBS|CIDP Foundation International. A truly remarkable woman Nancy has has lived through two bouts of Guillain Barre Syndrome (GBS) and with Chronic...
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Season 2
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Episode 4
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1:18:17

Kate Costello - Nutritionist and Wellness Coach - Keeping to the Basics
What can those with autoimmune condition do to help manage their condition beyond the treatment prescribed by their doctor? What diet should i be on if i have an autoimmune condition?Common questions that pop up in the MMN community. So...
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Season 2
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Episode 2
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1:23:31

Anita Brikman - Liquid Gold - About Plasma
To coincide with MMN Awareness month my first conversation this year is with Anita Brikman, President and CEO of the Plasma Protein Therapeutics Association (PPTA) A former TV presenter, Anita has dedicated much of her career ...
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Season 2
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Episode 1
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1:05:11

James Coxon - Riding to World Records with MMN
In this episode I chat to James Coxon about his remarkable journey with MMN which has seen him become a world record holding cyclist since he was forced by the condition to take early retirement from his career as a dentist. ...
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Season 1
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Episode 11
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1:15:47

Pam Stoikopoulos - Healthcare Innovator and life with MMN
In this episode I chat to Pam Stoikopoulos, Founder and CEO of Big Eye Innovation and member of the Board of GBS|CIDP Foundation Canada. Pam was diagnosed with Multifocal Motor Neuropathy in 2017. In our conversation we discuss her...
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Season 1
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Episode 10
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1:13:26

Chris Willard - AKA The Advocate Voice
In this episode I chat to Chris Willard. In late 2022 Chris was diagnosed with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) an autoimmune disorder in which the body's immune system attacks the myelin that insulates and protects your...
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Season 1
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Episode 9
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1:16:55

Richard Sperry - Life with MMN - From Bon Jovi to Biomarkers
Fascinating conversation with Richard Sperry who has been living with MMN since. Initially diagnosed with ALS, Richard chats about his diagnostic journey, the impact it has had on both him and his family, and much much more.Among a rang...
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Season 1
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Episode 8
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1:22:16

Claire Schulz Bergman - Living with ALS - Riding for a Cure update
In this episode I catch up with Claire Schulz Bergman to discuss her recent ALS fundraising challenge which saw her tackle a 380 mile bike ride and raise $40,000 in the process. A truly remarkable effort.
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Season 1
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Episode 7
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47:03

Chelsey Fix - Advocate and Champion of the Patient Voice
Conversation with Chelsey Fix , Associate Director of Research and Advocacy at the GBS|CIDP Foundation International. We discuss her work, how it fits into the wider work of the Foundation, and why she cares so much about putting the pati...
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Season 1
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Episode 6
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53:15

Claire Schulz Bergman - ALS Patient - Always Living Stronger
A conversation with Claire Schulz Bergman who after an initial MMN diagnosis was diagnosed late last year with ALS. In our chat Claire talks about her response to receiving a terminal diagnosis and about the amazing work she is doing to raise f...
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Season 1
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Episode 5
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1:07:51

David Savage - MMN Patient - Bikepacker and fundraiser extraordinaire
Conversation with New Zealand based Englishman David Savage who recently completed an epic 16 day self supported bike packing ride exploring his limits and raising funds for MMN research.
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Season 1
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Episode 4
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1:02:16

Brenda Perales - MMN Patient & Advocate
In this episode I chat to Brenda Perales, MMN patient, advocate and member of the Board of the GBS/CIDP Foundation International. A truly inspiring woman, in a candid conversation Brenda shares the ups and downs of her MMN story and talks about...
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Season 1
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Episode 3
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1:14:42
