Patient Advocacy Now
Come learn about the independent patient advocacy world and how the state of healthcare is changing in our country.
Episodes
48 episodes
Building Systems That Last: Rebeka Acosta on Collaboration and Change
In this heartfelt episode, we welcome back pediatric advocate Rebeka Acosta, BCPA, for a deeply personal and inspiring conversation. Rebeka shares the emotional decision to step back from her advocacy practice to focus on her son’s health, whil...
•
Season 3
•
Episode 20
•
36:03
Systems Insider to Board-Certified Advocate: Veterans, Mental Health, and Real-World Care
Rachel J Nash traces her journey from rehabilitation counseling roles inside large systems (state vocational services, VA, Medicaid social work) to launching a private advocacy practice anchored in ethics, transparency, and patient empowerment....
•
Season 3
•
Episode 14
•
43:01
The Power of Person Centered Care with Cynthia Overton
In this episode, we sit down with author and advocate Cynthia Overton to discuss her new book, The Clear Cane Chronicles, which explores what person-centered care really looks like in practice. Cynthia explains the evolution of models of care f...
•
Season 3
•
Episode 19
•
35:19
Opening Skies for Sick Kids: How Miracle Flights Helps Families Reach Lifesaving Care
In this episode, we speak with Dana Jarvis from MiracleFlights.org, a nonprofit that has provided more than 165,000 free flights over the past 40 years to help children access specialized medical care not available near home. Serving all 50 sta...
•
Season 3
•
Episode 18
•
30:24
Healthcare Powered by You: Self-Advocacy in a Broken System
Healthcare advocate Joyce Griggs shares her journey from navigating her partner’s dangerous post-surgery crisis to founding United States of Healthcare, a platform empowering patients to become their own advocates. Drawing on 20 years ...
•
Season 3
•
Episode 17
•
31:15
Your GPS in Healthcare: Navigating Medicine, Mindset, and Advocacy
In this episode, Dr. Nicole Rochester shares her remarkable journey from practicing pediatric medicine to becoming a nationally recognized health advocate. Sparked by her experiences caring for her late father, Dr. Rochester realized how vital ...
•
Season 3
•
Episode 16
•
34:57
Balancing Compassion and Medicine: From Hospice to Obesity Care
In this episode, we sit down with Dr. Sherika Newman, a hospice and palliative medicine physician and founder of Doctor in the Family. Dr. Newman shares how her journey in patient care led her to launch a patient advocacy service and later expa...
•
Season 3
•
Episode 15
•
34:42
Fighting for Answers: The Journey from Patient to Advocate
In this episode, Victoria Killian shares her decades-long journey navigating the medical system with chronic illnesses, beginning at age 12 with debilitating back pain. She describes her struggles with missed diagnoses, the eventual discovery o...
•
Season 3
•
Episode 13
•
40:48
Caring Before Crisis: Planning, Advocacy, and Aging Well
Social worker and aging life care manager Amy McWilliams shares her journey from caring her aging parents to founding Not Your Average Joe, an advocacy practice where she provides Personalized Senior Advocate Care Management and Services that h...
•
Season 3
•
Episode 12
•
40:16
“Donna Sullivan on Rare Disease Advocacy and the Fight Behind Complicated”
In this emotional and revealing interview, Donna Sullivan shares how her experience as a mother to children with Ehlers-Danlos Syndrome (EDS) led her into full-time advocacy. When her children faced chronic pain, misunderstood diagnoses, and re...
•
Season 3
•
Episode 11
•
32:01
Healing Chronic Pain: The Hidden Link Between Trauma and the Body with Andrew Gill, LPC
In this insightful interview, Andrew Gill, LPC, shares his unique approach to counseling clients with chronic pain, emphasizing the profound intersection between physical suffering and mental health. Drawing from years of experience, Gill highl...
•
Season 3
•
Episode 10
•
43:16
The Truth About EDS: A Doctor’s Experience with Medical Dismissal
Dr. Linda Bluestein shares her extraordinary medical and personal journey through the underrecognized world of connective tissue disorders, particularly hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorders (HSD)....
•
Season 3
•
Episode 9
•
46:51
Shelbey Arevalo: Bridging the gap between patients and providers in the dental field
In this episode, Shelbey Arevalo shares her powerful mission as a national dental advocate and consultant. She has spent over 15 years in the dental industry and now dedicates herself to bridging the communication and access gap between patient...
•
Season 3
•
Episode 8
•
31:50
Kristen Miller: A Guiding MedStar for the Patient’s Journey
Kristen Miller is a healthcare delivery researcher with nearly two decades of experience working with MedStar Health. Her work focuses on improving how care is delivered across all phases of the patient journey, from preparation before appointm...
•
Season 3
•
Episode 7
•
43:18
Inside the life of a Personal Medical Strategist with Kayla Thompson-Riviere
In this compelling interview, Kayla Thompson-Riviere, RN and Board Certified Patient Advocate, shares her journey from burned-out ICU nurse to the first and only independent advocate on Maryland’s Eastern Shore. Confronted with the confusion...
•
Season 3
•
Episode 6
•
39:16
Why Nurses Are Leaving Healthcare – And How Frykenberg’s Been Filling the Gap
In this episode of Patient Advocacy Now, we sit down with Teri Frykenberg, a nationally recognized leader in patient advocacy and patient safety. With a background as an ICU nurse, a three-time author, a newspaper columnist, and a serial entrep...
•
Season 3
•
Episode 5
•
40:55
Navigating Solo Aging and Inspiring Elder Orphans featuring Nancy Ruffner
In this thought-provoking episode of Patient Advocacy Now, we sit down with Nancy Ruffner, a trailblazer in patient advocacy and a passionate advocate for solo agers. Nancy shares her inspiring journey from social work to private patient advoca...
•
Season 3
•
Episode 4
•
34:27
From Cardiologist to Advocate in Crisis featuring Chris Price
In this heartfelt episode of Patient Advocacy Now, Dr. Chris Price, a retired cardiologist turned patient advocate, shares his incredible journey of resilience, service, and transformation. Known for his calm demeanor during medical emergencies...
•
Season 3
•
Episode 3
•
28:44
Guiding Lives Through Advocacy With Sensitivity featuring Lisa Berry Blackstock
In this powerful episode of Patient Advocacy Now, Lisa Berry Blackstock, founder of Soul Sherpa, shares her remarkable journey from estate administrator to trailblazing patient advocate. Lisa opens up about her personal battle with misdiagnosis...
•
Season 3
•
Episode 2
•
45:08
Legal Nurse Consulting Meets Patient Advocacy featuring Barbara Gaynor
In this enlightening episode of Patient Advocacy Now, we explore the vital intersection of healthcare, legal expertise, and patient advocacy with Barbara Gaynor, a seasoned registered nurse and Legal Nurse Consultant (LNC). With over 25 years o...
•
Season 3
•
Episode 1
•
29:16
Conversations With Patient Advocacy Influencer Christy Snodgrass @ChristyPRN
Christy Snodgrass is a registered nurse, turned healthcare reformer and patient advocate. While working in the hospital she witnessed firsthand how the complexity and lack of transparency in healthcare placed a huge burden on healthcare workers...
•
Season 2
•
Episode 12
•
34:27
From Surviving Cancer (twice) to Building Coalitions featuring Rachel Westlake
Rachel Westlake was a teenage kid with long, curly, red hair when she was diagnosed with large cell lymphoma at the age of 15. During more than a year of experimental treatment protocols, Rachel began to understand her own mortality, something ...
•
Season 2
•
Episode 11
•
40:34
Simplifying the Complex Healthcare System featuring Nan Wetherhorn
On this episode, we talk with Nan Wetherhorn, a South Florida Independent Patient Advocate and nurse since 1976, who learned the importance of advocacy during her mom’s battle with cancer. Nan’s mom was a pharmacist and was more than capable of...
•
Season 2
•
Episode 10
•
30:01
From Marketing Executive to Patient Safety Leader featuring Karen Curtiss
Listen in as we sit down with Karen Curtiss, a Board-Certified Patient Advocate whose journey into patient advocacy started with her quest for a lung transplant to save her dad's life. Karen was working in advertising and marketing at the time,...
•
Season 2
•
Episode 9
•
28:13
Behind the Bills: A Crusade For Clarity and Simplicity
In this episode of Patient Advocacy Now, we speak with Nicole Broadhurst, the founder of Tennessee Health Advocates. Nicole's practice is focused on medical billing, and she provides her clients with the tools needed to decode their healthcare ...
•
Season 2
•
Episode 8
•
29:05