The Voices of MED13L

"The Voices of MED13L" is a podcast dedicated to raising awareness, sharing stories, and building community around MED13L syndrome—a rare genetic disorder that affects development and communication. Each episode highlights the voices of families, experts, and advocates working to understand and navigate life with MED13L. From personal journeys and medical insights to educational tools and research updates, the podcast offers hope, support, and connection for anyone impacted by this rare condition. Whether you're a parent, professional, or simply curious, "The Voices of MED13L" is a space to listen, learn, and stand together in the face of the unknown.

Visit us at www.med13l.org

X: @med13l_fdn

Guest

Rowan Dias

Rowan Dias is a student at Deerfield Academy, Class of 2027, and a proud sibling of a child with MED13L Syndrome. Inspired by his family’s journey and the mission of The MED13L Foundation, Rowan spent a summer internship helping launch The Voices of MED13L Podcast. His work focused on setting up the podcast platform and production process with the goal of expanding the Foundation’s reach to more families, researchers, and supporters. Rowan brings a unique sibling perspective to the community and is passionate about using his skills to help amplify the voices of those living with MED13L and drive progress toward connection, research, and hope.

Guest appearance on:

The Voices of MED13L Coming Soon!