The Voices of MED13L

"The Voices of MED13L" is a podcast dedicated to raising awareness, sharing stories, and building community around MED13L syndrome—a rare genetic disorder that affects development and communication. Each episode highlights the voices of families, experts, and advocates working to understand and navigate life with MED13L. From personal journeys and medical insights to educational tools and research updates, the podcast offers hope, support, and connection for anyone impacted by this rare condition. Whether you're a parent, professional, or simply curious, "The Voices of MED13L" is a space to listen, learn, and stand together in the face of the unknown.

Visit us at www.med13l.org

X: @med13l_fdn

Producer

Rowan Dias

Rowan Dias is a student at Deerfield Academy, Class of 2027, a proud MED13L sibling, and the producer of Voices of MED13L. Inspired by his family’s journey and the mission of The MED13L Foundation, Rowan helps manage the podcast platform and production process with the goal of expanding the Foundation’s reach to more families, researchers, and supporters.

As a sibling advocate, Rowan brings a unique perspective to the MED13L community and is passionate about using storytelling, research communication, and advocacy to amplify the voices of those living with MED13L. He is also the Co-Founder of Able Athletics, an adaptive sports nonprofit focused on creating inclusive opportunities for athletes with disabilities. Through his work, Rowan hopes to help drive connection, awareness, research, and hope for the MED13L community.

https://www.linkedin.com/in/rowan-dias-785809415/

The Voices of MED13L

Rowan Dias

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