The Voices of MED13L
"The Voices of MED13L" is a podcast dedicated to raising awareness, sharing stories, and building community around MED13L syndrome—a rare genetic disorder that affects development and communication. Each episode highlights the voices of families, experts, and advocates working to understand and navigate life with MED13L. From personal journeys and medical insights to educational tools and research updates, the podcast offers hope, support, and connection for anyone impacted by this rare condition. Whether you're a parent, professional, or simply curious, "The Voices of MED13L" is a space to listen, learn, and stand together in the face of the unknown.
Visit us at www.med13l.org
Follow us on Instagram & Facebook: @med13lfoundation
X: @med13l_fdn
The Voices of MED13L
The Voices of MED13L Coming Soon!
Officially Launching in October 2025!
Welcome to The Voices of MED13L
The Voices of MED13L Podcast is brought to you by The MED13L Foundation and co-hosted by Katie Boychuck, Chair, and Vanessa Dias, Vice Chair. Both are parents of children with MED13L, and their personal journeys have set them on a path to push for research, create change for a better future, foster connection within the community, and continue the search for treatments and ultimately a cure.
In this podcast, you’ll hear:
- Updates on the latest research and therapeutic discovery
- Stories from families living with MED13L around the world
- Insights from clinicians and researchers working to unlock new possibilities
Together, Katie and Vanessa bring the voices of science, family, and community into one space — helping fuel hope for tomorrow while strengthening the bonds of today.
✨ Subscribe today and join us for The Voices of MED13L — where connection, discovery, and hope meet.
This trailer episode is hosted by Rowan Dias, a student at Deerfield Academy in the Class of 2027 and sibling of a child with MED13L Syndrome, who, with the help of a generous grant from Deerfield Academy's Center for Service and Global Citizenship, helped set up the podcast during a summer internship to expand the Foundation’s reach to families, researchers, and supporters.
Visit our website at www.med13l.org & follow us on social media @med13lfoundation
Hi, I'm Rowan Dias, a MED13L sibling, and I'm excited to welcome you to the Voices of MED13L podcast coming soon from The MED13L Foundation. This podcast will be led by our foundation's chair, Katie Boychuck and co-hosted by Vanessa Dias. And it's where you'll hear the latest updates on research, new opportunities and therapeutic discovery and powerful stories from families living with MED13L.
Together, these voices will support a connection and fuel hope for a brighter tomorrow for everyone touched by the MED13L Syndrome. Don't miss it. Subscribe today to the Voices of MED13L podcast.
