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Beyond Brain Tumours
Beyond Brain Tumours is a podcast by, for, and about the brain tumour community. Listen in as we talk to brain tumour survivors, patients, and caregivers as they share their stories and perspectives on brain tumour treatments, research, and survivorship. Learn more about Brain Tumour Foundation of Canada’s resources, programs, and services for people affected by a brain tumour. Visit www.BrainTumour.ca.
Episodes
10 episodes
Beyond Brain Tumours Survey
Hello, and thank you for being part of the Beyond Brain Tumours community!We want to hear from you! Your feedback is essential in helping us improve and shape future episodes of the Beyond Brain Tumours podcast to bette...
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1:52
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Entrevue avec Maria, proche aidante (en français)
Maria a été la proche aidante de son mari, décédé il y a plus de 6 ans d'un glioblastome.Suivez-nous sur Facebook et sur
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Episode 9
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47:44
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From diagnosis to recovery: Embracing positivity through a brain tumour experience
In this episode, we speak with Peter, a 49-year-old brain tumour survivor whose experience began in January 2019 with the diagnosis of a grade 2 astrocytoma following a seizure. Peter shares his fascination with awake brain surgery and the chal...
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Episode 8
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1:02:44
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Entrevue avec Kathy, survivante de tumeur cérébrale (en français)
Kathy est une survivante de tumeur cérébrale résidant à Québec et bénévole à la Fondation canadienne des tumeurs cérébrales pour le programme pédiatrique GOcervo. En 2011, elle a reçu un dia...
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Episode 7
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59:41
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Finding hope, building resilience and setting goals: Defining a new normal
In this episode, Alex shares how he navigated life after a brain tumour diagnosis, surgery and a challenging recovery. Join us as we explore the process of defining a “new normal,” including fertility preservation, building resilience, the role...
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Episode 6
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53:59
Family, friends and honest conversations: How to build your cancer squad
In this episode, we speak with Sarah, a registered nurse at The Hospital for Sick Children and a brain tumour survivor who was diagnosed 13 years ago. Having faced four reoccurrences, Sarah reflects on the vital role her “cancer squad” of famil...
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Episode 5
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39:14
An Indigenous perspective on caregiving and loss: Navigating a brain tumour diagnosis during the pandemic
Carolyn, who grew up in a First Nations community in southeastern New Brunswick, shares the story of her mother, Phyllis— a polio survivor and community advocate— who passed away from a brain tumour during the pandemic. In this episode, Caroly...
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Episode 4
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1:06:13
From subtle signs to diagnosis: The importance of listening to your body
Karen-Lisa is a brain tumour survivor whose experience began in 2015 with the diagnosis of a pituitary adenoma. As a young mother, she shares her experience with the challenges of navigating symptoms, overcoming assumptions, seeking second opin...
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Episode 3
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43:55
“I want to live like I’m living, not like I’m dying”: A father’s reflection on his son’s brain tumour experience
Denis was a world traveller turned passionate advocate for brain tumour awareness after his diagnosis in 2013. In this episode, we sit with his father and caregiver, Ken, as he reflects on his son’s life, courage, and the challenges they faced ...
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Episode 2
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54:46
One step at a time: Navigating emotions, support, and self-advocacy after a brain tumour diagnosis
Welcome to our new podcast! Today we sit down with Paul, a young adult brain tumour survivor and volunteer with Brain Tumour Foundation of Canada. Join us as our guest discusses the emotions that come with a brain tumour diagnosis and shares ho...
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Episode 1
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25:16
